In response to:

Given a Fighting Chance, Little Pearl Thrives

Richarddg Wrote: Sep 05, 2012 2:42 PM
Two and a half year ago, about 3 months into the pregnancy of our 6th child, we learned she had brittle bone disease, and may or may not live to be born. We were told if she was born, she would be severely handicapped and probably wouldn't live long. But, our doctors were all wonderful people who asked us the abortion question in a very tactful way. We said, no, we won't abort, and they accepted that and never brought it up again. Julia was born with broken bones, and lived for two days. The chance to see our child alive, even for two days, meant a lot to us, and we wouldn't change our decision. We are LDS, and we believe that she is ours forever, even though we have to wait for a while to see her again.
Pat1859 Wrote: Sep 07, 2012 12:52 AM
Makes a big difference doesn't it? Eternal families takes a lot of the despair away, I know from experience,
AlDavis2011 Wrote: Sep 05, 2012 3:45 PM
God Bless you and your wonderful family Richard!
Ruth and Eric Brown didn’t expect anything to be wrong.

At 20 weeks pregnant, Ruth had no indications her baby was anything but perfect.

So they were completely unprepared for what they learned at a routine obstetrical ultrasound: Their third child, daughter Pearl Joy, was profoundly underdeveloped.

Pearl was diagnosed in utero with alobar holoprosencephaly (HPE), a neural disease in which the brain and facial features do not form completely. Usually, babies with HPE do not survive a full-term pregnancy. Or if they do, usually they die within hours or days of birth.

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