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Friday, November 06, 2009
Parents plan Web broadcast for disabled daughter
By ANGELA DOLAND
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Disabled with severe cerebral palsy, 32-year-old Anne Lamic spends her days in southeastern France mostly in bed, surrounded by stuffed animals and dolls. She cannot speak or walk, and she sometimes has seizures.

Now, Lamic's parents are planning to broadcast her quiet life to the world via webcam. Their announcement has caused a stir in France, with many criticizing the plan as an invasion of Lamic's privacy and asking: How far is too far in the struggle to make disabled people more visible in society?

In terms of disabled rights on issues such as visibility and accessibility to public transport and buildings, advocacy groups say France trails behind Nordic countries, the United States and Canada, despite a 2005 law designed to ensure their rights are upheld.

Lamic's father says he hopes to force people into confronting their prejudices, even if his tactic startles them.

The webcam "will allow people to see handicaps in ways that are real, everyday and familiar," Didier Lamic told The Associated Press in a telephone interview Friday, adding that the videos "must be watched with tenderness and love."

Advocates for disabled rights say the parents surely have good intentions, but many are dismayed _ especially because Anne Lamic, whose family says she has physical and mental abilities comparable to a 1-month-old infant, cannot have a say in the matter.

"How is this young woman going to benefit?" said Monique Rongieres, president of Group Polyhandicap France. "Will people peering into this young woman's life be well-meaning? I'm not sure."

Maudy Piot, the founder of FDFA, an association promoting the rights of disabled women, supports the Lamics' initiative, saying, "Let's stop hiding people who are different."

Visibility of the handicapped is a problem in France, especially on television and in the media. A report last month from France's audiovisual regulator scolded TV stations because a meager 0.2 percent of people depicted on the airwaves have disabilities.

Didier Lamic, who lives in the southeastern village of Tallard, set up a Web site devoted to his daughter, http://www.doudouworld.com, in August, hoping it would make those in her situation "less invisible."

Decorated with a background of twinkling stars, it includes photos of Anne Lamic and news about her life _ visits from nieces and nephews, a bout of scarlet fever. One goal is to reach out to families in similar situations.

"A lot of families feel their children are excluded, imprisoned in a world where people don't see them or know them," said Didier Lamic, who worked in a medical care center before his retirement. Continued...

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