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Wednesday, November 14, 2007
Thomas Sowell :: Townhall.com Columnist
Crusades Versus Caution: Part II
by Thomas Sowell
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The recently launched crusade to have every child tested for autism before the age of two has as its reason an opportunity for "early intervention" to treat the condition.

Dr. Scott Myers, a pediatrician, has been quoted by Reuters news service as saying that autistic children who get earlier treatment "do better in the long run."

That may be true if the children are genuinely autistic. But the dangers of false diagnoses of toddlers and preschoolers have been pointed out by Professor Stephen Camarata of Vanderbilt University, who has tested and treated children with autism for more than 20 years and has encountered many cases of inaccurate diagnoses.

A prudent trade-off, as distinguished from a crusade, would weigh the dangers of false diagnoses against the benefits of "early intervention."

There is already considerable evidence of false diagnoses of preschool children as autistic, and the treatments inflicted on them can be abusive, with incalculable negative effects on their development.

What about the positive effects of "early intervention"?

According to Professor Camarata, those children "with true autism" are "very difficult to treat and may never say 'mommy' or learn to take care of themselves without Herculean efforts by their parents and teachers."

The limitations of what can be achieved with even early intervention mean that there can be real heartbreak, whether a toddler or preschooler is either falsely or correctly diagnosed as being autistic.

Much has been made of statistics showing a sharp increase in diagnoses of autism in recent years.

What has gotten much less attention is the changing definition of autism, which raises the question whether there has been an actual change in the real world or simply a change in the way words are used when collecting statistics.

People today are often spoken of as being "on the autistic spectrum," rather than as having autism.

While there are some conditions which are much like autism, there are other conditions, such as having a very high IQ or simply being late in talking, which often include characteristics listed on checklists for autism. These are open invitations to false diagnoses.

We would see the dangers immediately if people who wear glasses were included on "the blindness spectrum" or people with harmless moles were included on "the cancer spectrum."

Blindness, cancer and autism are all too serious -- indeed, catastrophic -- to use loose definitions that fudge the difference between accurate and inaccurate diagnoses.

Loose definitions of autism produce bigger and more newsworthy statistics, which in turn can attract more children into existing programs and attract more money from the government, foundations and other sources to support those programs.

Many parents have told me that they have been urged to let their children be labeled autistic, or on the autistic spectrum, in order to get money for speech therapy or other conditions from grants that are available to deal with autism.

Professor Camarata points out that the "less precise 'autism spectrum'" label "has had the unintended consequence of diluting resources, research and services to those children and families who most need the support" -- that is, families whose children suffer from genuine autism.

Loose definitions also promote the illusion of "cures" for autism, since most late-talking children who were never autistic in the first place "will be miraculously 'cured' because most late talkers who are otherwise unimpaired learn to talk with little or no treatment," according to Professor Camarata.

Parents whose children are late in talking or have other troubling problems would do well to seek diagnoses from the most highly qualified professionals they can find -- but not rely on the facile checklists being promoted in the current crusade for universal diagnosis of infants and toddlers for autism, without facing the question whether or not there are enough people qualified to make such diagnoses.

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Thomas Sowell is a senior fellow at the Hoover Institute and author of The Housing Boom and Bust.
 
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So what's new?
Many years ago when the school lunch programs began, my good friend who was a multi millionaire proudly announced how he'd gotten his son onto the lunch program and offered to show me how it was done.

That may not seem relevant to testing children for autism but the fact is that it is entirely in concert with the core issue. Which is money. Once the psychologist industry took flight in the early 60's, gaining a place on the benefit plans of insurance carriers, it was the opening volley of everything unholy about their movement toward cashing in on the Great Society.

So, I ask, not nearly as eloquently as Dr. Sowell, "What's new?"

Crazy Cheques
My parents used to live in a small town in Alabama. When money became available to treat children with *intellectual handicaps* or behavioural disorders, the local area schools began to hold classes ostensibly to let people know what the *indicators* were and how to apply for the money -- but in fact to let people know how to make sure their kids DID exhibit such *symptoms* and *indicators* so they WOULD get on the gravy train. This money was called The Crazy Cheque and there were familis that cleared more than $2500 per month in Funding after teaching their kids how to Act Out for the nice government Nannies.

Today in Ontario we have a group of parents fighting the province to get $60,000 per year (now provided to autistic children until they reach school age) FOR LIFE. Since $60,000 per year is considered *Rich* here in Ontario, think of the number of people who can and will hop on that gravy train once it gets a-rolling!

As I say frequently up here, IT IS ALL ABOUT THE GOODIES.

Before Psychologists circa 1960's
Scenario: Jack goes quail hunting before school, pulls into school parking lot with shotgun in gun rack.

1950 - Vice principal comes over to look at Jack's shotgun. He goes to his car and gets his shotgun to show Jack.

2007 - School goes into lock-down, and FB I is called. Jack is hauled off to jail and never sees his truck or gun again. Counselors called in for traumatized students and teachers.



Scenario: Johnny and Mark get into a fistfight after school.

1950 - Crowd gathers. Mark wins. Johnny and Mark shake hands and end up best friends.

2007 - Police called. SWAT team arrives. Johnny and Mark are arrested and charged with assault. Both are expelled even though Johnny started it.
Students are afforded grief counseling for several weeks.


Scenario: Jeffrey won't be still in class, disrupts other students.

1950 - Jeffrey sent to office and given a good paddling by the principal. He returns to class, sits still, and does not disrupt class again.


2007 - Jeffrey is diagnosed with ADD and given huge doses of Ritalin.

Becomes a zombie. School gets extra money from State because Jeffrey has a learning disability.







Scenario: Billy breaks a window in his neighbor's car and his dad gives him a whipping with his belt.



1950 - Billy is more careful next time, grows up normal, goes to college, and becomes a successful businessman.



2007 - Billy's dad is arrested for child abuse. Billy is placed in foster care and joins a gang. State psychologist convinces Billy's sister that she remembers being abused herself, and their dad goes to prison. Billy's mom has affair with psychologist.



Scenario: Mark has a headache and brings some aspirin to school.

1950 - Mark takes aspirin in lunchroom and headache goes away.

2007 - Police called. Mark is expelled from school for drug violations. Car is searched for drugs and weapons.






more on Psychologists
Scenario: Pedro fails English in high school.

1950 - Pedro goes to summer school, passes English, goes to college.

2007 - Pedro's cause is taken up by state. Newspaper articles appear nationally explaining that teaching English as a requirement for graduation is racist. ACLU files class action lawsuit against state school system and Pedro's English teacher. English banned from core curriculum. Pedro is given a diploma anyway but ends up mowing lawns for a living because he still cannot speak English.
Scenario: Johnny takes apart leftover firecrackers from 4th of July, puts them in a model airplane paint bottle, blows up a fire ant hill.

1950 - Ants die.

2007 - Bureau of Alcohol, Tobacco and Firearms, Homeland Security, and FBI called. Johnny is charged with domestic terrorism. The FBI investigates parents; siblings are removed from home; computers are confiscated. Johnny's dad goes on Terror Watch List and is never allowed to fly again.

SPCA sends grief counselor to Johnny's school

Scenario: Johnny falls while running during recess and scrapes his knee. He is found crying by his teacher who hugs him to comfort him.

1950 - In a short time, Johnny feels better and goes on playing.

2007 - Teacher is accused of being a sexual predator and loses her job. She faces three years in state prison. Johnny undergoes five years of therapy.



Right on, Pjal
That is the best analysis of the situation.

True with a touch of humor.

The best way to make a point.

Follow the money, as always.
Whenever the schools or psychologists get involved, there is always a money angle, and the truth is just an inconvenient stumbling block to be overturned.

Language expansion, and diagnosis creep are the cures they always fall back on.

If not enough kids fall into the definition of any illness or malady to get you the big bucks, just expand the definition. That's how middle class kids get free lunches for the needy (and the school gets extra money).

That's how nearly every boy in the country got ADHD (and the school gets extra money).

That's how the epidemic of Autism spread (and the school gets extra money).

There really is an epidemic out there, and it isn't Autism. It's called greed, and the schools are the cause, and the beneficiaries of all these epidemics, with a healthy dose of assistance from the School Psychologists and Drug companies.

Follow the money. As always.

Too true.........
I've worked in settings from birth through high school; it's all too true.
I've seen colleagues - psychologists, learning disabilities teachers - cater to influential parents who want their children to get perks such as untimed testing. Cater is putting it mildly - more like pandering.

Disgusting. When did we stop teaching integrity and honor?

Other side of this issue
I suppose with any situation there is potential for abuse, but as a parent of a child who resides on the "autism spectrum" it can be hard to get a specific diagnosis and genuine help. We knew by the time our daugther was two that something was "different," we just didn't know specifically what was going with her.

To make a long story short, she is mildly autistic. She also qualified for the GATE program at her school which means she has a high IQ. What many don't realize is getting help is not as easy as Mr. Sowell would lead one to believe. Our daughter is too high functioning to qualify for Special Education despite her diagnosis. She would have lingered in the traditional system getting little or no help had we not opted to homeschool. This has meant all the interventions we have utilized: counseling, vision therapy to treat concurrent dyslexia, special reading programs, etc. have been on our dime. I would do it again in a heartbeat, but please do not be mislead that there are programs and money out there just for the taking. How I wish that were true!

Pjal
Great post. Write some more.

Jeff, you have my prayers, but
Dr. Sowell's article is on the damage that can be done by misdiagnosing a child as "autistic" when that is not the case. In your case, even with extra effort, your daughter was misdiagnosed and you have had to do on your own for her. Because of her high IQ, the "checklist" was not sufficient for her. But your decision to home-school her may have been the blessing in disguise as you now are in control of her education and she will be much better for that.

Consider a child that is not autistic, but is labeled as so. The "treatments" that they will be forced to endure can cause permanent harm and that, to me and seemingly to Dr. Sowell, is more tragic than your daughter not receiving government assistance that may or may not have improved her life.

Jeff
"We knew by the time our daugther was two that something was "different," we just didn't know specifically what was going with her."

I can definately relate to that. Even when we informed our daughter's neurologist (she has epilepsy) he just ignored us.

The only thing I disagree with Mr. Sowell on about this article (and this is the first time I have ever disagreed with him) is his doubt of the veracity of the spectrum and reference to "true" autism" (Kanner's description?). Autism is definately on a spectrum, each child is different. There is a saying that when you've met one autistic, you've met one autistic.

Rich L
How do you know that Jeff's daughter was misdiagnosed? Very high intelligence is a hallmark of Asperger's, however, these children have a lot of difficulty fitting in in class- staying in their seats, staying on task, transitioning, etc. What you see as a brat with terrible parents may actually be a children that processes the world around them in a completely different manner than you or I. My first grader is on third grade reading and math level yet requires assistance to complete the very easy work on time because he is easily distracted. When he was three we noticed that he could not draw a line from one side of a page to the other- when he got to the midline, he would switch hands- do you think that to be normal? The push for testing is to test when indicated and use that very basic screening test to refer to someone qualified to make a diagnosis. Nobody is asking the gummint to force anything on anyone.

Harm
And what are the "long-term" consequences of a misdiagnosis of ASD? What are these terrible treaments that children undergo? We are three years into treatment and have never had anything other than caring professionals helping our children learn how to behave, cope and recognize how to interact properly with other humans. They have to learn what emotions are, what conversation is, how to look at people. Sorry krystalbird, I would much rather have my sons need no special attention (perks) but it just isn't in the cards for them- they need the help they get and are improving. They will never be "cured" but will eventually require no extra help in school or in life.

Responding
The reality is pinning down high functioning autism is not easy. My daughter was initially misdiagnosed as ADHD. This is because the entity doing the testing had a very strict criteria where only those on the low end of moderate to severe qualify as autistic. As an educator who spent ten years working in alternative education, I knew that she was not ADHD. The problem is those in the medical community do not agree with one another. I cannot tell you how many times our family has felt like a ping pong ball bouncing between opinons of the so called professionals. We have had to basically follow our gut, look at what the dueling professionals tell us, and make a decision based on what we know of our own daughter's strength and weaknesses. I think our counselor described our daughter best as "Aspergery." Is it a definitive diagnosis? No, but it fits our child's unique qualities the best.

Jeff and Clay
I emailed Dr. Sowell and told that I thought he was wrong on this issue; I suggest that you do the same. I believe he is wrong because he is uninformed and that a man of his great intellect will take the time to find out more about ASD. Pjal- I'm glad that you think this is funny. While I see the humor in your analysis and agree that our society is out of control, I can assure you that parents of ASD kids are not praying for more kids to have it so more research money goes there. I can also assure you that I would not wish this or any other childhood malady on the kid of my enemy. This is one of those things that disrupts the life of the entire family, pervasively, on a daily basis. It is a constant struggle that drains the energy out of the parents. It separates you from making friends with other parents because they don't want their kids playing with yours (they might pick up bad habits). Try thinking a little- I don't want your tax dollars, I just want peds docs to open their minds about early testing and treatment (paid by my private insurance as well as endless copays and deuctibles out-of-pocket).

Pjal -- scenarios
If you have someone to get credit for that little screed, better publish it now -- COZ I'M STEALING IT!!

How True!
I agree with CVN65. Between the neurologist, speech pathologist/audiologist, ophthalmologist, counselor...we have spent a large amount of money just in copays. Sometimes, we have had to fight with the HMO because the needed testing wasn't done through our insurance. What a hassle? Frankly, I would be thrilled if there were more autism centers for children on the high end of the spectrum. It would be nice to have the various specialists together who could create an integrated program. We have had to do this on our own. Maybe early detection will lead to a better system of delivering services.

AUTISM RESEARCH
My daughter went through medical school with a lady who is now a leading autism researcher. She has developed tests that have proved to help identify autism at an early age. She filmed babies behavior who later grew into children who were diagnossed with autism. and now compares that behavior with texts of new babies and is following their development. She has developed exericses that help them develop parts of the brain to overcome the disability caused by autism. She is have encouraging results. as long as it starts at a very early age. This hardly sounds like the scenario outlined by this writer who by the way is not an expert on Autism but is listed as the autor of Basic Economics a Citizens Guide to the Economy. Now what is his expertise in Autism I wonder. Seems to me he is just throwing out a lot of opinions on a topic he knows little about.

Jeff CV and others
Sowell was not attacking those who have issues that are in truth autism...he was attacking those who don't have autism, but have an incentive to say that a child is autistic because of the funding. Point blank, Jeff...you and your wife did the best thing for your child because you were able to work with her on an individual basis which is something that your daughter would never have gotten in a public or private school. Yes it came out of your pocket with no assistance, but YOU were able to decide what was best for your child, not the school administrators and teachers.

He is not saying that all cases of autism are the same, he is saying that the funding should be reserved for those that have severe cases of it and the parents have no other way of getting the assisstance that they need.

CVN65, I know she was misdiagnosed
because Jeff said so in his first post and reiterated that fact in his reply. He seems to be more capable of correctly diagnosing his daughter than the professional because as with many of our current knowledge areas, we think we know more than we do and the arrogance of such thinking can cause much more pain and suffering than it alleviates.

I am all for correctly diagnosing autistic children as early as possible, but the chance of harm to "normal" children from a misdiagnosis must be considered. In every endevor, the cost/benefit analysis must include all negatives as well as the positives.

Many years ago, I worked with several autistic children as part of Adaptive Education classes in college and have great respect for anyone having to deal with them on a continuing basis. While there are certainly very difficult times, there are also some of the most rewarding times you may ever experience.

pjal - that is great
pjal - Great humor and so true. Thanks.

Tish
I am sorry but I have to disagree with you. Would you advocate the same approach of "save the therapy for only the worst cases" if your child had a very favorable case of lymphoma? Better to keep the chemo for only the ones that "really need it"? The sad fact is that very little is covered by private insurance and most services are difficult, if not impossible, to contract privately. I paid $24K for health insurance only to have them tell me that only consults would be covered (after the deductible was satisfied) but that speech and OT were not covered for kids with ASD diagnoses. We switched insurance to get better speech and OT coverage. Mobile therapy and TSS workers, if you can get one in a rural area, can't be had for cash or from private insurance. These mild autism cases will benefit the most because, like my two sons, they will be able to live and work in society. They will not need to live in group homes ($) or require protection from themselves ($) or need the govt to house and feed them ($$$). Believe me, I pay taxes in the six figures every year; it is nice to see some benefit for a change.

Falling through the cracks....
Sometimes something is so huge and obvious, that it only gets noticed in parts.

Three blind guys happen across an elephant. The first, upon grasping the great beast's leg, declares that the elephant is like a tree. The second, upon feeling the great sides of the animal, declares that no, it is obviously like a wall. The third, who has hold of the trunk, tells the others that of course they are wrong. The elephant is most certainly like a snake.

A government representative happens along just then, and realizes that he has just found a goldmine, because his brother-in-law is looking for grant money and here are three very lucrative proposals that can be written up and pushed through by his friend the politician. They will be easily passed under the new provisions mandating effective programs for the blind.

continued in my blog.....

Jeff and CVN65
I hope you guys will read the rest of my post on the blog I had to create to publish my comments, because they were so long. I know of some resources that may be valuable to your kids. You get there by clicking my screen name above the post.

Thanks

RichL
I missed where the "harm" in misdiagnosing and assisting a child occurs? Is it the social stigma? It certainly isn't the label in the school system- there are 5 or 6 very different ASD kids in first grade here- all mainstreamed. As they improve and their behaviors disappear, therapies are withdrawn. Most are expected to need little to no intervention within a few years. I admit that I misread you; I thought that you posited that Jeff's daughter was misdiagnosed with ASD because of her high functioning (it was the ADHD misdiagnosis). My apologies.

Hmm....
Rich L. I do and I don't agree with you. I agree children can be misdiagnosed. Why does this happen? From my experience, it is because autism can be subtle with symptoms that overlap other conditions such as ADD, ADHD, Sensory Integration Disorder, Auditory Processing Problems...the list is long. Sometimes the symptoms can be as the experts say "co-morbid" meaning the ADD exists along with the autism. Is the autism causing the ADD? Is the ADD giving the child autism like symptoms? The problem is when the child is seen by several specialists who are functioning independently of one another, the parent ends up having to connect the dots. That is unfortunate and unfair, especially to the child.

I don't disagree with early screening as I have seen the results of intervention first hand. What is needed is an intergrated approach so that the diagnosis is accurate because various professionals have worked together along with the parents who have the most intimate knowledge of the child. The medical community needs to quit looking at individual symptoms and look at the whole child.

So while I support early screening, I'll have more confidence in the process when a holistic approach has been created that truly benefits the child and family.


AudiR10
So we have people from Canada telling us how their government taxes the earnings of the producers to provide for the unproductive, and if we took a poll, we could probably get similar comments from around the globe.

What I wonder is, what's going to happen when those of us doing the producing decide to stop?

Do you think we could all get together and take over some small country or desert island somewhere and form a true Republic where working men and women actually get to profit from the fruits of THEIR OWN labor?



We need to be cautious
Medical diagnoses and psychiatric diagnoses differ in that a medical diagnosis relies upon measurable objective criteria, while a psychiatric diagnosis relies upon criteria which are behavioral and hence subjective, making them potential prey to any bias held by the examiner and lending themselves well to "expansion". In the past, these subjective criteria were recognized as such, and care was taken not to impose a diagnosis, with its treatment and “labeling” implications, on patients who did not strictly meet those criteria.

For better or for worse, this is no longer the case. Yes, an increasing awareness of the possibilities does lead to better diagnosis and earlier treatment. On the other hand, thanks to diagnostic expansion we now have people suffering from no more than garden-variety self-pity smugly announcing that they’re been diagnosed with “depression”. We have normal energetic little boys medicated to the gills because of “attention deficit hyperactivity disorder”. We have late talkers and children who don’t make eye contact labeled as “autistic”: my older son was one of these, and I thank God that his childhood preceded the new “awareness” of autism. It turned out that he had both visual impairment and a visual perception disorder; these were addressed and he’s now a happy and contributing member of society.

My own view is that the concept of diagnostic expansion is too easily susceptible to the machinations of the agenda-driven: it permits those looking to excuse whatever they please by claiming Victim Status to be eagerly accommodated by those looking to cash in on it. The end result is a trivialization of the suffering of patients who have the real McCoy, a demand for increased taxes and insurance premiums to subsidize a great deal of unnecessary treatment, and—in the cases of autism and ADHD, true victimization of the misdiagnosed.

CVN65, apology accepted.
And you have my prayers for your sons as well as Jeff's daughter. I wish there were easy answers to all of life difficulties, but perhaps that is the creator's intention. It is easy to stay on a wide bright path, probably paved with good intentions, while very difficult to stay on the straight and narrow path that life dishes up.

If I missed thanking you for your service, my bad. The USS Enterprise is an impressive place to work!

And Don’t Forget…
pjal -- You forgot the following:

Scenario: Gun is brought to school

April 20, 1999 Two kids bring guns to school = Columbine Shooting = 12 dead and 23 wounded.

October 3, 2006 A 32-year-old man with a gun enters a one-room school = West Nickel Mines Amish School Shooting = 5 killed and 5 injured 5

April 16, 2007 One kid brings guns to school = Virginia Tech Shooting = 32 dead and many wounded.

Rich L
Thanks, I was proud to wear the uniform. the Big E was an amazing place to work. It is said that the the road to hell is a gentle, soft, grassy slope downwards while the road to heaven is steeply pitched upwards, uneven and rocky. We all do our best, it just isn't always enough for these kids.

further to Wayne
You'll note that all cases are recent. In the 50 year old one there would be enough other armed folks around (including ROTC at Virginia Tech) that the shooter would have thought twice about their video-game like actions.

CVN65, Jeff - sympathies
i thought i was the only one with challenging kids.

one did what you child did. he drew to the middle of the page and switched hands to complete the rest. he wrote to the middle of the page and switched hands to complete the sentence. he was a late talker 2.5-3yrs.

he has turned out ok, although he does have anxiety issues.

another has severe dyslexia. the youngest was misdiagnosed with ADHD and was on the wrong meds for several years. he is on other meds that help him control his attention and his manic moods.

it is funny that the parents have to do so much research to guide the Drs.

Autistic?
Your children are NOT autistic.

THEY'RE BORED!

Extremly harmful!!
CVN65 -- yes there is harm in a misdiagnosis!!

forcing a 2 year old child to sit for 1-2 hours straignt at a table and perform tasks in ABA sessions sure sounds like child abuse to me.

Not getting the proper therapy because the child is misunderstood and is always interpreted via a label prespective sure sounds harmful to me.

Getting the treatment based on a misdiagnosis certainly sounds potentitally harmeful to me. If it is so harmless, then it is probably not very useful either. Uneless they invented treatment that does only good to people who need it but has no harm to anyone else. Do they have science to back this up?? I know the answer to that one.. NO!!

Infact, the whole notion of urgency here to diagnose children as early as possible is scintifically baseless. no one has still been able to show that starting treatment at 2 vs at 3 or 4 or later has any siginificant imapct on the outcome when the child grows. There isn't even good scientific data to support the current treatments in general. It is just assumed that it is making a difference, and that the starting at 2 is better then starting at 3. I disagree and I think a lot of this is based on myths regarding the first 3 years.

Sowell is not criticizing a reliable ASD diagnosis, help, and treatment. He is against the mad hysteria, that is counter productive and will do more harm then good.
One thing this ASD hysteria has caused is that everyone now thinks he's an expert, and many doctors are feeling the pressure to simply diagnose!!

Before reading the first post
my thought was "follow the $$$$" - and darned if most of the posts were right on target. How many researchers are just waiting for all those government $$$ to "study" the problem.

There has to be common sense shown somewhere along the way - just one more example of the tail wagging the dog.

One of our children was "antsy" in elementary school and has turned out to be an "antsy" college graduate doing quite well in the world.

I HATE HATE HATE labels! There is no way I would ever subject a 2-year-old of mine to tests such as are being prescribed. Parents take some control over what is done to your children - the government doesn't know what is best!


Thanks, Dr. Sowell
for bringing attention to this matter.

And, D5, I say your comments are right on target!

Wolfpat
We have had a lot of respectful, reasoned discussion on this topic today. Your comment is not part of that. Try a little harder next time.

mamadoc - THANK YOU!
I've been saying the same thing, and getting nowhere.

I feel bad for those of you who are suffering from this in your families, but you are completely missing the point.

Suppose my child is deaf. I can see something's wrong, from a fairly early age, and I now insist that the entire world stop, recognize my suffering, and test every baby in the entire country - just in case they are deaf, too.

I'm only trying to help all the other parents who are also suffering, or who will, but just don't know it yet.

Why? I was smart enough to recognize a problem with my baby, and go for an evaluation, so who am I to now insist that everyone else must subject their babies to testing - just in case? At what cost?

Please know there are a multitude of maladies that might afflict any child, and while it is unfortunate for that individual child, it is no concern to the entire rest of the country. There is no reason on earth to subject every baby to endless testing for every possible malady - just in case.

It's sad that this affliction has affected your child, but that is the end of the story. It is NOT an "epidemic", and since it can't be transmitted - like a cold, there is absolutely no reason to subject every baby in the country to testing.

There is, however, a whole cadre of folks out there who earn a living based on treating this malady. (and quite an expensive treatment it is, according to some of the posts above.). I wonder how much more money could be earned, if only the diagnosis were more widespread, and the Government could be guilted into paying?

Stop thinking about your own personal story for just a moment, and think about that. I know you want what's best for your kids, but you're really not thinking about anyone else here.

Cape Conservative
Read the posts again. Go back to yesterday's posts and read them. Darn it- don't you people read? Not one parent of an ASD child is asking for government money or research. Nor are they asking for universal testing for all 2 year-olds. We are pointing out the fact that peds docs are very unprepared to pick up on ASD problems; a simple CHAT test should be administered when ASD is suspected, not in all cases. That is not enough for a diagnosis- it must be given by someone with specialzed training in diagnosing and treating ASD. Parent's are advocating to the AAP, not congress. Nobody is asking the gummint to intrude on anyone's life or privacy. I would never advocate that. You, personally, are speaking from your very narrow experience with your children. There is an enormous difference between an "antsy" and bright child that is likely to be bored by the slow classroom pace and a child that will go and rock in a corner when stressed. It is real. Feel very blessed that you don't have to deal with it.

KM
Once again; I will type slowly this time, just for you. Parents don't want "every child in America" tested. There are warning signs to look for and a very simple, noninvasive test called the CHAT can be done by the peds doc- no referral, no specialist needed. It doesn't have to be administered to every kid and not every one needs a referral. But those that need one will see a specialist to determine if they need help. Despite what D5 blathered on about, it is quite apparent that children do better when therapy starts earlier with 3-6 being the critical period. One of the major differences between autism and deafness is that your docs are trained to diagnose and treat it; with autism, they are usually clueless. Did you have to find a specialist on your own or do internet searches just to find any info on deafness? Well, we did and so do most of the parents with ASD kids. I don't want your tax money, I just want the AAP to encourage peds docs to recognize the problems early.

Just don't get it.
After reading comments the last two days, I'm convinced that unless you have a child with autism or ADHD you just don't get it. It’s sad and frustrating that so many people with little or no experience with these conditions are so adamant that it’s a scam for money and that autism and ADHD don’t exist.
Please seek out a family trying to live through this and live with them for a month or two then write back. You go from having your heart broke to being hopeful to being frustrated 10 or 20 times a day. I would hope for more compassion and understanding.
I guess it might be true that God doesn’t give you anything you can’t handle, thus some of us are dealt this hand while others, who possibly couldn’t handle it, aren’t.

Jeff and CVN65, Wayne et al
My humor, if you wish to see that side of the issue, was presented in the same light as Dr. Sowell's article and was not intended to ignore the realities which afflict our society, nor, for that matter, to be insensitive to those parents who find themeselves grappling with the day to day heart rending situations that some parents are experiencing.

I'm hardly in the same league as Dr. Sowell and only compare the spirit in which we both approached the wider subject of how the psychologist industry...which is my description has been abused, misused and foundationed by greed.

In my first post, I spoke of the school lunch program and how a multi-millionaire's child was worked into the program with such glee and abandonment of principled decency. This was simply supplemental to the core issue which Dr. Sowell discusses to the extent that it is one of the many politically driven programs that, while seemingly worthy, soon become subjected to considerable abuse that'w motivated by greed.

Having the Board to myself, I then posted two series of what many thought to be humorous but, as expected, like Dr. Sowell's article, hit a few nerves, most especially from those like Jeff.

What can I say? We, the posters at TH come from every walk of life, some rich, some poor, different ages and eras, different life experiences, different political philosophies.

We cannot please everyone all of the time and may, in the course of addressing any one issue, seem to be insensitive to some.

That's the nature of these kinds of forums, we simply cannot concur on every point of view.



D5
Proof. There are lots of things that can not be proved. Tell me how can you prove that perioperative antibiotics help improve infection rates for open-heart surgery? You can't. Yet, every day they are given. You would say that these people didn't need the antibiotics since the OR is so sterile and that the risks of antibiotic allergic reactions outweigh the potential benefits (which are unproven). the scientific method would be to divide up, at random, a group of cardiac patients into two groups. One group would get antibiotics, the other a placebo. We would then follow infection rates to conclusively see the truth. Are you going to sign up for that study? Well, I'm not signing my children up for it either. Evidence suggests very strongly that therapy instituted by age three has a greater degree of success than if it is started later. Nobody wants hysteria, mass testing or government mandates. Don't ask for empiric evidence when no study could ever be contrived to provide it. Just admit it- people like yourself, Coastal Conservative and KM think that people like me must be bad parents because of the behavior of our children and are grasping at ASD as an excuse for our own shortcomings.

Wayne
I think that you are right. I have tried to appeal to the intellect and common sense for two days and all I have gotten is that this is not real and we are money-grabbers and bad parents. I am leaving this thread for good. Best of luck to you and yours and to all the parents of ASD kids out there.

Jeff and CVN65, Wayne et al (cont)
We are constrained by word limits and can't personally interact as we might in a face to face discussion.

Another difficulty is that we come from different eras which shaped how we view society and the world. I'm either advantaged or disadvantaged by coming from that older generation of people who grew up during the World War II era when we knew and understood rationing, sacrifice, and a collective togetherness that's dramatically changed in the span of time which my second and third postings covered, that is, before 1950 and 2007. While the anecdotes are largely fictionalized, they present with stark realities which I lived through.

In that era and before, we didn't know about autism, ADD, ADHD or the full compendium of disorders which we now devote considerable resources to for Special Education, often amounting to tens of thousands of dollars per child. To the contrary, as primitive or barbaric as that may sound to today's parents, we dealt with it.

The returning veterans of World War II and their families, their children then proceeded forward to build the greatest Nation in the history of the World and, I daresay, we are damn proud of what we did.

We accomplished this without a civil rights program, without Medicare, without Medicaid and without psychologists, school lunch programs, special ed programs and WELFARE was a dirty word.

We had no affirmative action, color TV, Nintendo, Chinese toys, IPods and there was no such thing as soccer moms.

We didn't swear in front of ladies and the vast majority of us graduated from high school, ADD, autism, ADHD, notwithstanding. Some of us continued into higher education and many did not but most of us had a root education system upon which to foundation the way we interacted with one another.


Exception not Rule
pjal
You can always find exceptions to the rule but the fact remains that in the last three years I have dealt with these issues most of the people I have come into contact with who work with autism and ADHD are underpaid and overworked. Also, I wish that when my child was two or three years old there was at least a preliminary test to determine if I might need to explore the possibility that there could be a problem. No requirements or mandates, just a heads up.

CVN65
Thank you and I wish you and all families dealing with this the best.

Firearms and Columbine
Wayne, Columbine, Virginia Tech, et al were a result of firearm RESTRICTIONS!

I know that is a difficult concept for gun-grabbing liberals, but, for once, THINK about it.

When only the evil, and criminals, are armed the innocent always suffer. And, liberals are HORRIFIED by the concept of SELF DEFENSE (one of the inalienable rights inferred in the US Constitution.

If you look to government for defense, you are a FOOL. The best you can ever hope for is that the perpetrator MIGHT be found and MIGHT be punished; unless you hurt him during the commission of the crime. Then you'll be punished for violating his 'right' to steal from you.
I can hardly wait to leave this "Wonderland" and its' inhabitants like you.

CVN65
It's fine for anyone to seek treatment with an efficacy that is not "scientifically based". you seem to agree that much is not supported by science. however, it is dead wrong to deceive the public in thinking that there is proven effective scientific treatment out there (not effective out of faith). I don't know about you, but most people would like to know the truth. it's OK for you to have faith in something, but don't misinform the public! people think that it is just a matter of getting an early diagnosis, and they can turn things around. this is the message being heard by this "crusade". If you believe in that, that's fine, but it's wrong to deceive the public. if you don't have the science, on what basis exactly is the AAP making all of these recomendations on.

elaborate remarks for CVN65:

1. diagnosing early means, more errors (especially now with the Autism hysteria and the "spectrum"). The older you are the more reliable the diagnosis. so if you diagnose more children at an early age, there will be more false alarms (maybe not a bad thing according to you), which means that more children will outgrow the incurable. how can that be? I thought there was no cure. This is probably the major factor behind any statistics that show better prognosis for early diagnosis.

to be continued..

CVN65 - continued comments
continued comments to CVN65:

2. you are wrong that the treatments cannot be better studied. there are strategies for controls even in these situations. They may not be ideal, but it is certainly better then no control at all. Right now, the studies are very weak!!. they do show progress, but they can't show that there is more progress then other treatments or even then just staying home (assuming normal or even enriched environment).

3. "Critical periods" are mantras usually being thrown around by people who know nothing about the matter. What does neuroscience, and cognitive science currently tell us? That there are certain critical periods like for language and vision.. but all this means is that there is a critical period in which the environment must interact with the developing brain to fine tune itself, or learn 1st language for example. It doesn't necessarily mean that you can enhance the brain or rewire it by special stimulation like some people wrongly conclude (like baby einstien DVD's and sesame street which call their products "developmental" products instead of "babysitting the children" products)

4. No one (I certainly had not) suggested yet that some special treatment can't be beneficial. But don't just assume that critical periods has anything to do with all this. The brain continues to be learnable (plastic) throuout life, and there is nothing special about the 1st 3 or 6 years.



I'm not saying that therapy can't be effective. by all means, I would strongly argue for immediate intervention and therapy, but the rush to diagnosis, the pressure on parents, and the misinformation is a recepit for disaster. and don't please don't give them excuses for lacking the science!! Especially you.


Jeff and CVN65, Wayne et al
CVN65 writes: Wednesday, November, 14, 2007 5:04 PM
Wayne
I think that you are right. I am leaving this thread for good. Best of luck to you and yours and to all the parents of ASD kids out there.
____________________________________________

Wayne writes: Wednesday, November, 14, 2007 5:18 PM
Exception not Rule
pjal
You can always find exceptions to the rule but the fact remains that in the last three years ++++++++++++++++++++++++++++++++++++++++++=
To the first........you are not the only person that has addressed the issue raised by Dr. Sowell to have a corner on the intellectual capacity to understand what he's saying.

Instead, you lack the intellectual capacity to realize that he's addressing a broader issue that reaches far beyond your understandable personal experiences.

Instead of hanging in there and attempting to take into account that there's an associated large degree of misdiagnosis, a greed factor that's overwhelming, or that there are those of us who no a great deal about these, you have chosen the path of victimhood by your hauteur attitude of being among those few who, by virtue of your reality, know better than the rest.

And Wayne, who has dealt with this for three whole years.......somehow that grants you the right to place your individual concern above all the rest of us?

Can you not see how the few are trying to influence the many? That is traditionally how these programs begin. Sure, you have a problem, so do I, so do many of us.

But your remedy will do little to solve the larger problem that is the basis for Sowell's article which was never intended to delegitimize the kinds of difficulties which you've experienced.

Providing wholesale testing of the magnitude which you might advocate will only lead to an expansion of the kind of fraud, abuse and overreaching that we've seen in the psychologist industry that simply didn't exist before then.

Now I really must stop.

Whew, This Is Getting Heated!
As I read over the comments throughout this thread, I respect that there are differing opinions.

1. pjal--I am not offended by your initial entry. As one who appreciates satire, I see the humor in the excesses you portrayed. No offense taken.
2. I am not offended that some people look at this situation with skeptism. The reality is autism is in the news in a way it wasn't ten-fifteen years ago. Why is that? Any number of factors: better diagnostic tools, more awareness on the part of the public, and a broadening of the category to accurately reflect that children can be affected in a mild to servere way.
3. Can there be a misdiagnosis? Sure. Does that mean we just ignore the problem? No. The effort should be to fine tune the diagnostic tools so they are not invasive, but accurately help doctors and parents answer questions.
4. I am not a victim nor is my child. My faith tells me, God has a purpose in all this. Are there weary days? You Bet! There but for the grace of God go I.

Mr. Sowell presents a question. We the public are trying to answer that question. Hopefully, in the debate that follows solid solutions can be worked out to benefit the children affected. I think we can at least all agree we need to keep the needs of these children as the focus of the debate.

Sowell's Biography
is a must read to begin to understand this genius in our midst. Dr. Sowell has a child (a son, I believe) who had some early difficulties related to talking later than average.

To the person above who wrote that Dr. Sowell knows not about this subject, because he is an Economist, shame on you!

Dr. Sowell's son turned out very well, according to his biography.

I highly recommend all to read the biography!

And Dr. Sowell, if you are reading this, mega-dittos to you, sir. You are an inspiration to us all (well, except for the nut-jobs out there!)

Another aspect of incorrect or hasty
diagnoses include the threat of lawsuits if intervention isn't swift and effective.

I work with teens are are classified emotionally disturbed (which allows them some sped services), and will not work with younger children with other disabilities including autism. The law is very strict regarding the IEP (individual education plans) for these kids, and God help you if any mistake (perceived or otherwise) is made. At my school, our special services department is full of great people whose hands are tied with razor wire and days filled with fending off potential lawsuits. There are times when evaluations and possibly diagnoses are made to err on the side of caution so that a lawsuit doesn't appear years later stating that little Johnny's future was stolen from him because his LD wasn't detected. Some parents afraid for their child's financial future will resort to litigation to finance the retirement plan. Its rough in education these days.

response to Jeff
Whew, This Is Getting Heated!

I take your comments in the spirit of calm and reasoned discussion and you're right, my comments are based one one slant and that doesn't mean that I'm indifferent to those which you and others have made.

It is only because of my age, experience and having watched the evolvement of the psychologist industry grow from infancy to a full blown multi-billion dollar grab for dollars on the backs of people such as you and others which just happens to be one part of an otherwise very difficult and growing part of what you and other parents are dealing with 24/7.

I'm neither indifferent to or unaware of what you are going through, it has happened to me in an up close and personal way. But by occupation, I'd also been exposed to the way in which Dr. Sowell's view of this issue is based upon and can align his comments alongside so many of the "meant well" projects which we've embarked upon, going well beyond the particular subject of autism, ADD, ADHD and the many more alphabetical abbreviations that have been added to the medical nomenclature codings upon which insurance carriers employ to decide what benefits should be paid. I helped, in my time, to implement this coding procedure in the very early days of Medicare and remember all too well how the "industry" grew with ever increasing paper mill colleges turning out so called psychologists.

So, with all due respect, I've a tendency to be jaundiced but I'm not ignorant to or so sinister as to set aside the realities of which you speak.

In a more give and take atmosphere, I'm confident that you and I, as well as other parents of children with special needs would be zble to calmly sort out where we all stand.

It just so happens that one of my closest friends operates a Variety School in Honolulu which I've visited frequently and contributed to as well.

I know where you're coming from, trust me.

Question the Source
The American Academy of Pediatrics is, on the one hand, a medical/scientific organization that puts out science-based information. It is also an advocacy organization, whose positions may not have scientific support. Part of the advocacy is on behalf of pediatricians.
Unfortunately, the output of the AAP is not labelled to indicate whether a particular statement is primarily science-based or advocacy. The onus is on the consumer to determine whether any individual statement from the AAP is designed to benefit the welfare of children or the welfare of pediatricians.
Also unfortunate is the lack of publication of internal dissent within the AAP regarding many of the advocacy positions.
AAP Fellow for 25 years; I've seen it all.
A screening test is typicaly high sensitivity/low specificity. High sensitivity means few who have a condition are missed ("low rate of false negatives"). Low specificity means a significant rate of false positives (positive test result, but doesn't have the condition). A negative test is probably true. A positive test is more ambiguous, and requires the secondary application of a more specific test, typically more difficult to perform.
If this test with greater specificity cannot be performed until the child is older, then many children will carry this ambiguous positive test result from the screen until the diagnosis can be ruled in or out. Result, as Mr. Sowell points out: needless parental anxiety and inflated results of unnecessary intervention.

Jeff - my compliments
You'll probably not see this as these threads come and go overnight.

I wanted to both thank and compliment you for standing tall and not cutting and running. I uunderstand fully what you feel and why and admire your attempt to reason your position against those who may appear to have been against you.

I honestly don't feel that any of us were against you, Wayne or CVN65. Agreeing wholeheartedy with Dr. Sowell speaks only to a broader issue and fails to address the more narrow band in which your personal experiences are found.

All too often, Jeff, the genuine and real needs of the few, upon being addressed at a political level, become the rule rather than the exception because of the willingness for so many to take advantage of the programs that have been developed to address the exception. I don't know if I can make that as clear to you as it is to me.

To more graphically illustrate it, I presented the story of school lunches. My children, living with my ex-wife, could have qualified but we were too "proud" to take advantage of that program when it came into being. My children are now 45 & 47, they have adult children. That gives you some idea of how long ago this program went into effect. Over that span of time, the food program for the alleged needy children has broadened as has the misuse and fraud. This has cost billions of dollars. It is just a small example of one of many such "feel good" programs which are intended for the exception that eventually grow to become the rule.


Jeff - my compliments (cont)
And so it is with the subject being discussed. You always begin with what is now being proposed, testing ALL children. Let's not kid ourselves, it is and will become a gold mine for the psychologist industry just as so many of these well intended early intervention programs have become.

That's the problem. And it's real and it's a historically profound reason to be extremely cautious about embsrking upon yet another.

My most profound hopes that one day your youngster will benefit from all that you're doing to help. I have witnessed many make the transition.


Question the Source
Bill CC

It's refreshing to have your kind of input which I'll regard as an expert opinion weigh in on the issue which Dr. Sowell warns against.

In my experience, the parents of children who have been either properly or improperly diagnosed will understandably become consumed with their mission as parents and advocates both. It is entirely understandable.

They can become, unfortunately, the victims of just what you've described as one tries to weigh the genuine versus ulterior motivations of groups who stand to benefit or give benefit.

Unfortunately, we live in a social atmosphere where emotion gives way to some of the unfortunate realities seen in the political madness which clouds our ability to make informed distinctions.

Thanks for adding your expertise.

pjal, thank you, too.
People seem to be reading what they want from my posts, but I can assure you, I'm not calling anyone's parenting into question on this thread, nor am I calling them greedy or fakers. (Since I don't know them personally, I don't see how I could.)

I have stated repeatedly that there are very real cases, of both Autism, and ADHD, but that there are also a lot of not real cases, as well.

Whether these children are diagnosed incorrectly due to incompetence, bad parenting, or greed, is irrelevant, because the resulting crusades that follow always end badly, for both the children, and society.

Perhaps these people are just too young, and have not witnessed the past follies coming from those who always want what's best for "The Children", and therefore do not immediately question the motives of anyone who invokes that classic Leftist canard.

The moment I hear anything is for "The Children", and most especially if it has anything whatsoever to do with psychiatry, I know a scam is brewing, and proceed from that position.

With the current Autism curve of events, I guarantee you in 15 years, we will be hearing all the horror stories of the children who were incorrectly diagnosed, poorly treated, and damaged, by these oh so caring crusaders. Just like we did with the drug rehab kids, and the ADHD kids.

Learn from history folks. It keeps repeating, about every 10-15 years.

False Diagnosis, Pt 1
I can certainly understand the concerns of both Dr. Sowell and commenters here like KM and pjal. But having a daughter on the autistic spectrum, I know what Wayne, Jeff, and CVN65 are going through as parents.

There are several things that should apply to "testing all children".

First, we shouldn't test all children, only those with obvious developmental/behavioral issues.

Second, the CHAT test should not be used to make a final diagnosis. The child should be tested by a trained psychologist who is capable of making the diagnosis of autism.

False Diagnosis, Pt 2
Testing all children and only relying on the CHAT for diagnosis will most certainly produce false positives.

My daughter began exhibiting strange behaviors after her bout with encephalitis. At that time, we were referred to a neurologist who began prescribing anti-convulsant drugs for her. Previously, she had only had a few febrile seizures. After the encehpalitis, she began having longer seizures and more frequently. I can't count the number of times her seizures have lasted over an hour.

False Diagnosis, Pt 3
Anyway, at around the same time that she started taking her medication, She began to start doing such odd things as banging her head on the ground, rocking back and forth extensively, biting her wrists, screaming for large periods, and sniffing us and things alot.

We initially thought that it must be the medication that the neurologist put him on. We reported the behaviors, but he made no comment other than continuously changing the medication from one to another.

False Diagnosis, Pt 4
We switched to another neurologist who just kept insisting that our child was spoiled and recommended books on child rearing. Considering that we have a 19 year old daughter and a 22 year old son, that was insulting. We knew something was wrong but weren't getting anywhere.

Finally, as luck would have it, a nurse noticed that Edith's behavior was indicative of something important going on. We spoke to a psychiatrist in the hospital. He asked us a few questions and told us that our child might very well have autism.

False Diagnosis, Pt 5
I didn't even know what autism was. I immediately tried to make an appointment with a child psychiatrist who was in the TriCare network. He was booked up for months but referred us to a psychologist for diagnosis as he would need that first.

Long story short, the psychologist ran a battery of tests, we had to fill out questionaires, and based upon these tests, observation and the guidelines of the DSM IV, Edit was diagnosed with autism and ADHD.

False Diagnosis, Pt 6
We took Edith to a developmental center in Arkansas where we received a second diagnosis confirming she is indeed autistic.

There is no chance of any misdiagnosis with Edith. She is clearly autistic. She presents the typical autistic behaviors: hand flapping, echolalia, meltdowns etc.

The point of all of this is that a simple CHAT test is not enough for diagnosis. It might point to further testing to make sure whether or not autism is a factor. Just like with Edith's sudden developmental/behavioral problems that were obvious, only children with obvious problems would be a candiate for early testing. In my opinion. I'm not saying that the problem observed has to be as drastic as was our daughter, but is should be something new and noticeable.

Narrow focus
KM's comments are probably worth a second read by most of us who input what some people narrowly focus upon when discussing a much broader issue. That's the very nature of a crusade mentality which is precisely what Dr. Sowell warns against, the leap to widespread testing of questionable value that will lead yet more parents into a life of obsessive concern for their child.

It's so easy to misdiagnose, especially when dealing with persons that haven't received a days worth of medical training who make their living treating the human mind.

Not too long ago, over in Hawaii, consideration was being given to allowing non medically trained psychologists with the right to prescribe mind-altering medications. Perhaps I'm just old-fashioned but it sounds like a pathway to disaster.

I know what the younger parents of today would say but I just cannot wrap my head around how today's modern parent hovers over their little darlings, the soccer moms, when my very old generation could be trusted to leave in the morning and show up in time to clean up for dinner and that was the norm, not the exception. All without cellphones.

Oh but...........baloney! There's no Oh But, you're creating a dependent mentality. Society is out of control and we call this normal?


Occams Razor
Had the CHAT test been administered when I was a child, I would have been diagnosed as autistic, because (save for the late talking) I exhibited every single one of the "indicators". The problem was discovered when I started school: I was born extremely nearsighted. Thus my inability to recognize faces, the fact that I did not point at things etc. What could have been a major disaster lasting a lifetime was corrected with proper glasses.

All of us girls were disruptive and restless in class. We were not autistic. We were BORED. The solution was not drugs and therapy. It was books.

Sometimes it is better not to leap to the worst-case conclusion without trying other solutions first. Occam's Razor is still the best diagnostic tool in the tool kit.

A property rights angle
One of the roots of the problem, in a general sense, is that the government has the lion's share of the resources that can be used to solve or ameliorate these problems as we would otherwise *individually* see fit, thanks to it taking those resources from us, by taxing our creative efforts.

We apparently choose not to do anything about that; so can only proceed with our current crappy system of appealing to the "king" for his mercy and to beseech him for permission to line up at his trough. (So much for the fruits of our Revolution from the British crown.) If we really had a right to our property, we could have used it already to solve most of the problems I'm reading about here, at the family level and well as pooling our resources in voluntary associations.

But given our current situation, I think we should still proceed in the spirit of free choice: the parents should be the ones to say if their child gets tested or not. The default choice should be no testing. Why should the government force its hand, yet again, on the unwilling of us? (Just rhetorical -- I know the answer to this question: if the government had it any other way, it would have to lose a little bit of its current sovereignty over the people, and it can't afford even a small concession.)

It seems to me that most everyone commenting so far agrees that the unwilling should not be forced, no? Just a thought.

pjal - audi
seems we are all on the same mental track. Every attempt the government makes to "scare" us about boogymen around every corner going to get the kids (whether in person or via diseases)

I love the emails about how did we ever survive growing up in the 50s. Why our mothers let us out to play all day - we had lead paint in our homes - we rode bikes without helmets - HOWEVER...WE LEARNED PERSONAL RESPONSIBILITY - how to take care of ourselves.

And every time the government steps in to tell parents what to do, it takes away more of that personal accountability. Parents used to feel competent to make necessary decisions regarding the welfare of their families. Now it appears the government has declared them not fit to do so AND THAT IS WRONG WRONG WRONG!

The best government is the LEAST government!


AudiR10
"Had the CHAT test been administered when I was a child, I would have been diagnosed as autistic, because (save for the late talking) I exhibited every single one of the "indicators". The problem was discovered when I started school: I was born extremely nearsighted."

So, are we to believe that your "nearsightedness" produced: hand flapping, rocking back and forth, banging your head, violent meltdowns, echolalia etc.?

Sorry, as much as I normally agree with you on the political spectrum, I fail to see your point on the autism spectrum. If you had been properly diagnosed via DSM IV you would NOT have been a candidate for autism.

Occam's razor? Hardly.

No offense is intended.

In defense of doctors
In defense of doctors who miss the diagnosis,please remember that:
1. The last doctor you see, the one who makes the diagnosis, has benefit of the cumulative experience of all preceding doctors. He knows what hasn't worked.
2. The last doctor you see will be dealing with an older child, in whom the signs/symptoms will be more reliably specific.
3. The last doctor will have benefit of the self-education of the parents, who will be able to enumerate more specific indicators, instead of the generic "he just ain't right" or "he's not like our other children".
Perhaps the first doctor, over the same time frame, would also have made the diagnosis.
Or not. Medical education old saw: "The best way to miss a diagnosis is to have a diagnosis". I.e., physicians have a tendency, once having latched onto a diagnosis, to put on special glasses that magnify anything that supports but filter out anything that contradicts that diagnosis.
These special inclusive/exclusive glasses are not the sole property of physicians, of course. Perhaps the parents themselves have acquired their own.
Which brings us to the concern expressed by an educator above: liability for failing to diagnose. Are professionals feeling pressured to make the diagnosis that the parents demand?
An OB/GYN acquaintance of mine who had a high C-section rate described, "No one ever got sued for doing a C-section; you only get sued for not doing a C-section".
Has anyone ever been sued for overdiagnosing autism, etc.?

IGNORANT, SIMPLISTIC AND BIASED!
As the father of an 11-year-old autistic boy, I find Thomas Sowell’s article to be poorly researched, biased and insulting. I am afraid that Sowell’s analysis is too simplistic and biased based on his personal experience with his late-talking son, as described on his book “Late Talking Children.”

Most pediatricians and family doctors are not prepared to even recognize autism, and tend to ignore a worried parent’s observations when presented with a child with developmental delays. This practice has resulted in thousands of autistic children not being diagnosed in a timely manner, losing an opportunity to get early intervention services when they are most needed – before they are four years old. Autism, as in most developmental conditions, is a condition in which only the persons closest to the affected toddler can paint a clear picture of his behavior -mother knows best.

What “changing definition of autism” is Mr. Sowell referring to? Although there are checklists for parents and teachers such as the Autism Diagnostic Interview-Revised (ADI-R), only a licensed psychiatrist can make the “official” diagnosis utilizing either the DSM-IV (American Psychiatric Association, 1994) or the ICD-10 (International Classification of Diseases, 10th ed., World Health Organization, 1993), according to the National Institutes of Health.

While the author is correct stating that many parents let their children be labeled autistic, he then attacks that decision by saying this practice dilutes resources for research and services. In our case, when our son was diagnosed at 20 months, he was also prematurely “labeled,” not diagnosed by the local school system, so he could start receiving early intervention services.

Be careful what you ask for
If we demand a "zero tolerance" approach to the diagnosis of autism, and enforce this demand with litigation, what we will get is the overdiagnosis of autism in the grey-zone population of children who may exhibit some soft, non-specific signs/symptoms of autism. Whatever benefit derives to the children who actually have autism with regards to early intervention, what impact will the overdiagnosis have on those who do not?
Another venue: Richard Wexler, who writes about the excesses of child welfare agencies, describes that in some states the child welfare workers act more as diagnosticians than actual welfare workers. Relying on non-specific indicators of abuse, which may be nothing more than varieties of temperament, they proceed to actions against families. The "Little Hoover" commission of California estimates half of the children removed from homes by their state agency did not warrant that action. Great expense to California, great chaos for children and families. Yes, benefits those children who are being abused, and covers the asses of the welfare workers who don't want to miss abuse, but at what cost to the greater society?
With regards to the DSM. The DSM, since version III, has given greater objectivity to psychiatric diagnosis, but has in no way eliminated the practitioner-to-practitioner variability in the diagnosis of the individual patient. Indeed, practitioners still appear to have their own favorite short list of diagnoses that they selectively apply.
To what degree is the practioner who specializes in the diagnosis of autism a learned person applying science, and to what degree is he an enabler giving the customer what he demands, in response to the fear of "zero tolerance" litigation?

al, how was your 20 month old
involved with the school system on any level?

This seems to support my opinion that the Schools are doing their best to be the controller of our children from birth to adulthood, in order to control all things the parent should be controlling. Why else the ever lowering of the required attendance in schools? It used to be first grade, then it was kindergarten, now they're trying for mandatory pre-school, and now your 20 month old child? What possible reason would you have to take a medical condition to the school?

Will they soon be the birthing room for us all, so we're sure not to have a single moment of undue influence on our children?

CLAY - try to stop asserting that only severe symptoms are in the Autism diagnosis. That is precisely the point, in every response. TOO many kids with NO apparent symptoms are being diagnosed with Autism. NO ONE is suggesting that your child is not Autistic! We are saying that TOO MANY children who are not autistic are being called autistic, when in fact they are not.

I realized it was Diagnosis creep, when my local news interviewed the "autistic" high school kid who won the local Basketball championship.

Do you see a successful team sport or high school excellence in your Autistic child's future? If so, then maybe your child does not have Autism, either.




KM
"CLAY - try to stop asserting that only severe symptoms are in the Autism diagnosis."

Go back and re-read the last two sentences of my post (pt. 6) and you will see that I am NOT doing that. My point was testing children who don't appear to have any problems isn't necessary.

"TOO many kids with NO apparent symptoms are being diagnosed with Autism."

That was my the point that I was making.

"Do you see a successful team sport or high school excellence in your Autistic child's future? If so, then maybe your child does not have Autism, either."

She seems to like soccer and balls in general, but, at this juncture I doubt she would be teachable. I don't know what the future holds. But, if she did manage to graduate from high school or play soccer that wouldn't make her autism go away.

If that is your guidelines then you are ignorant about what autism is.

Clay writes to AudiR10: 11/15/07 11:2
AudiR10: "Had the CHAT test been administered when I was a child, I would have been diagnosed as autistic, because (save for the late talking) I exhibited every single one of the "indicators". The problem ... I was born extremely nearsighted."
----------------

Clay responds: So, are we to believe that your "nearsightedness" produced: hand flapping, rocking back and forth, banging your head, violent meltdowns, echolalia etc.?
------------------------------

KM says: Clay - stop asserting that only severe symptoms are in the Autism diagnosis.
-----------------------

Clay responds: Go back and re-read the last two sentences of my post (pt. 6) and you will see that I am NOT doing that.
--------------------------

KM says now: Clay, you weren't doing that in Pt.6, but otherwise, your responses to people is to imply that only severe symptoms are being discussed.

AudiR10 was giving an example of a case that would have been diagnosed as Autistic (spectrum), but who really wasn't. Your response was to list off the most severe symptoms, to deny his theory.

I stand by my earlier comment. You can't have it both ways. Either only the severely afflicted are Autistic - in which case no routine testing is needed (since the symptoms would be obvious to all), or you buy into the whole expanded Autism gambit, and feel that normal people would not notice a problem on their own (which makes everyone else's assertions that this is a scam that will falsely diagnose all comers - to the benefit of those treatment facilities that will spring up to treat the masses of newly diagnosed - correct).

If the former, then stop throwing out only severe symptoms, if the latter, then stop saying you're not for routine testing. The mandatory part is not on the table just yet, but that will be the next step. Once it's routinely checked, and the numbers of this "epidemic" can be inflated into the MILLIONS, that's when big Daddy steps in and it all becomes mandatory.

Just watch and see.

KM
"AudiR10 was giving an example of a case that would have been diagnosed as Autistic (spectrum), but who really wasn't. Your response was to list off the most severe symptoms, to deny his theory."

I merely listed off some, not all of the traits of autism on the spectrum. I don't know why you keep misreading my intent as only "severe" symptom apply.

I get the feeling that you don't really know much about autism. You can't just have one thing "nearsightedness" and be diagnosed as autistic. Autism is a developmental disorder that is much more complicated than that.

One more time for the record:

1. I don't believe it is wise to test "every" child for autism, especially when they aren't displaying any regression developmentally. Normal children needn't be tested.

2. Testing every child can lead to false postive diagnosis.

3. Testing children who are displaying developmental delays with accomanying odd behaviors is a good idea. But, the CHAT test alone is not good for a proper diagnosis.

4. I am supporting your argument against testing all children and against it being mandatory.

What is your problem? Do you just want to bicker?

school lunch and autism
pjal has the idea. When I taught we were instructed to get every kid on free lunch. If their parent refused, we filled out the forms fraudulently, kept a list and didn't give the kids his free lunch card. why? aid is determined by percentage on free lunch program. People in the autism programs want them to grow. When mexican parents tried to get their kids mainstreamed we threatened them with los federales and said we would have them deported if they tried to insist. same reason.

Interesting
Reliance on any one expert on such a contentious issue as Autism is an amazingly elementary mistake by Prof. Sowell in these articles. It almost appears as if he wanted to confirm a pre-determined position and sought out someone to agree with him....no, a man of Prof. Sowell's stature surely would not do anything like that.

IF Prof. Camarata actually said: "According to Professor Camarata, those children "with true autism" are "very difficult to treat and may never say 'mommy' or learn to take care of themselves without Herculean efforts by their parents and teachers."" then he needs to actually read the literature beyond the Speech Language literature. It is true that there are NO effective SLP-based treatments for Autism, however, the research is clear (National Research Council, 2001 - Educating Children with Autism) that ABA IS effective.

Are their children who are mistakenly diagnosed with an Autism disorder without any "biological markers"? Yes.

Are their children mistakenly diagnosed with a Brain Tumor WITH high-tech Whiz-Bang medical tests? Yes, too.

The Pediatricians merely repeated what the National Academy of Sciences recommended 6 years ago - Early SCREENING of toddlers and if the child is indicated as possibly having specific deficits or delays in the screening then they should be referred to a specialist who is adequately trained to make a reliable diagnosis. A VERY different position than what is portrayed in these articles.

You people Need to Get a Clue
A friend of mine sent me this article and at first I thought it was a joke. Whoever wrote this and to all the idiots that believe it . . You make me sick.

Whatever!
Some of you people are completely diluted...In my opinion, unless autism directly affects you, then you shouldn't have an opinion on it. What do you care is it's misdiagnosed? What do you care if schools are given extra funding for these kids? I am the parent of a child with autism - a child who was properly diagnosed. A child who struggles every day to do normal things. I am so sick of the stigma attached to these kids by uneducated morons. You have no idea what we go through on a daily basis - and you people should stop being so crass and opinionated about a subject that you know nothing about. Unless there is a child with autism living in your home, that you care for on a daily basis, then you need to keep your rediculous opinions to yourself. And some of you people are teachers??? It makes me understand all the more clearly why more and more people are choosing to home school. Come to my home for a few days and you'll walk away a little more educated - I can guarantee that. Apparently they don't teach ethics, inclusion, patience, understanding, or common sense in the Education curriculum in college.

Whatever!
I much agree with Anissa from Missippi. What the heck. What does a person who does not have a family member, a nephew, a niece, a grandchild, know what autism is? Unless you live with it everyday you have no clue. These kids are who they are. They didn't ask to be born with this condition as anyone else asks for a handicap of Down's Syndrome or Cerebral Palsy. These are people, human beings who are trying to do the best they can. The families are trying to do the best they can. It is not easy raising a child with a disability knowing that they will still have autism into adulthood. The parents and even people in the community band together to help one another. State governments are stepping up and helping where they can. They cannot do it for the families and most of all we don't want monetary help, we just want to help our kids and give them the best lives they can live to their individual potential. I have worked with my son since he was 9 months old and every milestone is one to be celebrated. Let's not raise a prejudice to people with disabilities. It just hurts when we have prejudice and fortunately children who are their peers without disabilties don't have that prejudice.

Autism
I read Dr. Sowell's article and didn't think he was being uncaring to people who truly suffer from Autism. I know a family with a child that is autistic and it is difficult at best. I think Dr. Sowell is concerned that there are those who will attempt to take advantage of societies desire to help and create programs that simply line their pockets with money. By expanding the definition to an "autistic spectrum" sounds like it provides a greater opportunity to take advantage of the system. It would be ideal to provide the most funds available to those who truly require it. I think that is what his message is.

Michael Savage
I wonder if Dr. Sowell is aware that Michael Savage has a link to this column in support of his diatribe against autism and what he calls incompetent parents with "idiot" children.

As the mother of two children on the spectrum, I appreciate and agree with much of what Dr. Sowell is saying. I do think that there are children being diagnosed that aren't autistic. That is just as bad as misdiagnosing a child who is. If I were just dealing with speech issues, I would never have allowed my son to be diagnosed. That's why a child must meet several criteria, including behavioral and social, in addition to the speech delay to receive a diagnosis.

We must proceed with caution when diagnosing anyone with a mental or developmental disability. These are labels that stick for life and can affect everything from education to getting a job to qualifying for healthcare. Common sense and good medical practices must dictate the diagnosis.


Hitler's recruitment team
I'm not shocked at how ignorant you are about children with Autism. Unfortunately, people like you got your chance during Nazi Germany to eliminate the undesirables of mentally ill people, not to mention the 6 million Jews. You have nothing positive to add to the human experience except to promote ignorance and stupidity by bullying children who can't defend themselves against hateful attacks.

You sir are a coward who needs to be humbled. You've insulted me and my family and will fight you man-to-man to defend my son's honor... any time and any place. Please call me to arrange our meeting.

Hitler missed his opportunity to recruit you, but the Savage Nation now can recruit our next generation of Nazis.

Mike Savage -- Hitler's recruitment team
Mike Savage, I'm not shocked at how ignorant you are about children with Autism. Unfortunately, people like you got your chance during Nazi Germany to eliminate the undesirables of mentally ill people, not to mention the 6 million Jews. You have nothing positive to add to the human experience except to promote ignorance and stupidity by bullying children who can't defend themselves against hateful attacks.

You sir are a coward who needs to be humbled. You've insulted me and my family and will fight you man-to-man to defend my son's honor... any time and any place. Please call me to arrange our meeting.

Hitler missed his opportunity to recruit you, but the Savage Nation now can recruit our next generation of Nazis.

Lyme disease- tick borne illnesses-
My grandson was diagnosed with autism, but we later discovered he had lyme disease. Lyme mimics autism with almost every symptom. I just read a study out of Calf. which found 90% of the children labeled autistic actually had lyme disease!! No good test for lyme disease. It is a clinical diagnosis. Find a good lyme literate doctor, and have your autistic child checked for tick borne illnesses. We finally found a great lyme Dr. in MO. Children are at high risk for tick borne illnesses, and the diseases are spreading rapidly across the US and the world. Research, and you will see what I mean. Antibiotics are what finally helped my grandson!!

Lyme disease- tick borne illnesses-
My grandson was diagnosed with autism, but we later discovered he had lyme disease. Lyme mimics autism with almost every symptom. I just read a study out of Calf. which found 90% of the children labeled autistic actually had lyme disease!! No good test for lyme disease. It is a clinical diagnosis. Find a good lyme literate doctor, and have your autistic child checked for tick borne illnesses. We finally found a great lyme Dr. in MO. Children are at high risk for tick borne illnesses, and the diseases are spreading rapidly across the US and the world. Research, and you will see what I mean. Antibiotics are what finally helped my grandson!!

To Jeff and all parents in his situation
No one is suggesting that truly autistic children be chastised or punished for making the life of the parents much harder.

What Dr. Sowell wrote and many others believe is that giving the diagnosing authority to industries that can't perform their stated objectives satisfactorily--whether it is education systems failing to teach kids (even those children without disabilities)or contain their costs (as is the case for medical service providers)--is a recipe for disaster:
the unintended consequence of over-diagnosing a condition that carries life-long stigmas is to be expected under these circumstances, as are the strong reactions from persons deeply affected by the properly diagnosed cases out there (to you, my prayers and best wishes).


my personal experience
I do not profess to know all about this subject.But I do know from my own personal experience,that schools do not always have the best interest of the child when diagnosing children with "educational autism".First off,the criteria used to decide which child needs to be placed in autistic category is in my state of CA isentirely arbitrary and subjective.My son who is a first grader had some problems making friends in school I was very naive in agreeing to test him,That was a mistake.What followed was a bewildering array of absurdities.He is a very tall kid,and he used to rock his chair backwards on its back legs,that fit the repetetive motor mannerism criteria,
he has only one friend,that fit the "extreme social withdrawal criteria,
and I was told that if I accept the label of autism,he will get help in socila skills training.
Some thing in my gut said this is wrong,I refuse to accept it.What followed was a period of pure hell for our family,we were put under
enormous pressure by the school.Without going into any details,I was witness to some very unprofessional behaviour from the school .i refuse to budge,got him thoroughly tested,turns out he had SEVER ASTIGMATISM AND MYOPIA .He is a changed child after we got him glasses,he still has to catch up on a lot of things like confidence( which is at zero now.)

There are kids who are misdiagnosed ,the parents do go through a lot of trauma,there needs to be more stricter guidelines,not make the criteria so broad,that no body is accountable for any misdiagnoses.I am living proof.If I put down everything that happened to our son,it would take a whole day. kudos to dr.sowell

Autism
According to the above described symptoms of Autism, can't post FDR liberalism also be considered a mental disease. So lets all work together to cure it. VOTE CONSERVATIVE AND FIGHT FOR LOGICAL MENTAL HEALTH SERVICES NOT WASTEFUL FUNDING OF IDIOTS/DEMOCRATS

Autism
As a teacher and parent of an autistic child, I find it amazing that at no point was a specialist in Autism quoted in the article, when Vanderbilt has one of the leading research/treatment facilities in the nation, but a speech therapist was quoted. That is like a general practitioner in medicine criticizing a neurologist's practice.
Additionally, schools cannot and do not diagnose children with autistic disorders.
Like any profession, there will be those that are not as competent as others. There will also be misdagnoses of cases, which is the nature of any medical disorder. But I can tell you from not only my experience, but the experience of many other parents, it is not easy to get your child diagnosed with autism. My pediatrician did not catch it at age 2, but because I was educated about the subject, I did recognize hallmark symptoms that he missed. He simply was not well informed on the subject. Now, pediatricians will be better educated so that they can make informed decisions. Why is this so important? Because, statistically, early intervention makes a HUGE difference in the success of the child.
Articles like this one are not only myopic and ill-informed, they give parents that do not wish to have their children "labelled" ammunition to not get services for their child.
Learning disabilities and medical disabilities are like cavities. You can ignore them for a while, but they continue to grow until a gaping hole is formed that has to be addressed or it results in the eventual destruction of the tooth. Why use a few examples of misdiagnoses to taint the whole process? Additionally, why do away with a screening tool that may help so many? It saddens me that narrow views like these get so much press.

Autism
I am a nurse and a mother of two children on the autistic spectrum. My oldest is the most severely impaired. We became aware that there were some things that were "different" about our daughter around the age of two. However, she was meeting her "milestones" so I was told "you worry too much." I prayed that she was a "late bloomer" but my unease never left. Not until she finally lost all language and began exhibiting public bizarre behaviors, did the pediatrician finally acknowledge that there was a problem. We were pro-active and found a developmental pediatrician who specialized in autism. She spent hours with our daughter before making her diagnosis. It was heartbreaking, but it was true.
My experience is not atypical. Many parents sense something but are not taken seriously. Minimal time in medical school is devoted to the subject. Your average pediatrician should not be the one making the diagnosis. But that is why a SCREENING tool would be helpful. Not to diagnose, but to make the Dr. aware that the child might need to be evaluated by a specialist.
Most families are devastated by the diagnosis. I've never met anyone who wanted the diagnosis. And until the research catches up with the numbers, families spend thousands of dollars from their own pockets and are easy prey. But that is the point of the crusade - to identify the scope of the problem, find research funding, and help these children.
My grandma used to say "it is what it is." If a child is autistic and does not receive the proper diagnosis, they will suffer. If screening tools are used by professionals to point out those children who may have autism and using that information to experienced specialist who can make a final determination, how is the child not served?

Professor Camarata IS an expert
In response to Kristy's question about why a speech therapist was quoted in the article and not an expert in autism: Professor Camarata IS an expert in neurology - a specialist who diagnoses and treats children with autism in his clinic at Vanderbilt, at the Brain Institute. You can find more information about him online.

Also, not necessarily in response to Kristy, but who IS an expert in autism? Does such a thing exist? Or is it that neurologists or developmental pediatricians get special training in autism?

I am suspicious of a group of people who want to do away with the vaccination schedule because of the harm they believe it can do, yet want to screen every kid for autism at 18 months regardless of the harm that can do. At 18 months our son would have qualified under today's expanded diagnosis, but today at age 5 he is very clearly not autistic. He is very gifted, having taught himself to read at age 4 and just started teaching himself to play the piano. His language is still a little behind but he will have basic conversations. The personality traits of the highly intelligent mimic those of autism.

I have known truly autistic children and do believe early intervention is critical for them. But we need to step away from these expanded "spectrum" criteria.

personal experience getting a diagnosis
My son has Autism.

At age 3 he had lost any language he had developed after an immunization. He had no eye contact, and didn't respond to his name. We had him tested to see if he was deaf first, because he didn't respond to loud noises. Our pediatrician said to just wait and see. To get a diagnosis, we went to 3 specialists to try to figure out what was wrong.

After the diagnosis of Autism, no treatment was offered at all. There was nothing available in our city. He was eligible for some early intervention which was an hour twice a week, in a group setting. He didn't seem to learn anything from it. Eventually, we were told that he wouldn't improve and might never speak, or toilet train, or even learn what yes and no meant.

We eventually found an experimental treatment program in another city and travelled there to see if he could be enrolled. It was the only thing available at the time offering any kind of real treatment. To be part of this research he had to be tested again by an independent specialist to confirm he actually had Autism.

My son is not a fake. Our family has insurance. Our insurance never covered any treatment for his Autism. Only the tests to confirm he had it. We have provided all the care out of our own pocket, and had to use research funding for treatment, which was later ended for lack of funding.

Our regular Doctor had never seen a case of Autism before. I have a friend who is a special education teacher. She said that she had never had a case of Autism in her school until the same year my son was diagnosed. She said that no other mental illness, learning disability or other problem was like Autism. It isn't the case that we were just re-labeling kids from one problem to another. They just weren't there to re-label.

we can't always wait for research
Sometimes we have to be a part of the research...

There is a period of time where most children learn language very quickly, around age 3. If you miss learning language at that stage, it is very difficult to learn any language after that. This is why getting appropriate treatment, if it is available, is so important at an early age. These kids don't just grow out of it. I have met other Autistics that did not have the treatment options my son had. Some never speak at all, some are still in diapers as adults. They require a lot of extra care, and this was avoided in my son's case, because he now speaks, is toilet trained (that was very difficult and took years, though) and is very intelligent in his area of interest, yet still needs help with certain simple daily living skills. No one knows what causes Autism, but I think that isn't a reason to be afraid of over-diagnosing or under-diagnosing it. I think that if it was your child, you would do whatever you could to help him, even trying unusual things. Because when it is your child, you can't wait for research to someday catch up and help you. You search among the things that might work and try things.

If I had waited for research to prove everything we have tried that has helped our son, he would have had to wait 10 years. Or still not be in treatment--apparently nothing is the definitive thing to help. Yet there have been many things which we tried that incrementally helped him. I would never have allowed anyone to hurt my son.

fears of medical quackery
Mr. Savage's brother was in the hospital in the dark ages of treatment, when people were still given insulin shock therapy, and were restrained, and were heavily drugged with things that caused Tardive Diskenesia (brain damage) and even were given lobotomies. I can understand why he is afraid of medically sanctioned quackery.

Mental health is the least funded by insurance companies for this reason.

But that doesn't mean we can ignore the immediate mental health needs of our children and communities.

We need to find sane, rational, kind and effective things we can do until the research comes up with more findings.

treatments for Autism
Some of the treatments we have tried with our son and were helpful are some of the same things Mr. Savage has written about in his earlier books; like homeopathy, nutrition, and herbal medicine. There are specific things that have helped our son in these areas, like the GFCF diet, combating possible candida infections, providing an organic whole foods diet, vitamin B6, magnesium, and DMG.

The ABA therapy that once was considered harsh in its early form, has been refined and does not require any harsh techniques to work. This therapy is one of the only proven by research to actually produce significant improvment now.

These aren't cures, but have greatly improved my son's quality of life, as well as the quality of life of our family. If everyone was diagnosed early, as our son was (at age 3 1/2) maybe this will help the long-term prognosis for other children. However, I believe there is more than one cause of Autism, and so this might mean that there will be a lot of work to do to find the right set of things to help each individual child.

I was a volunteer in the inner city for 5 years, and there is a big reluctance to go to Psychologists, and I saw several children who went undiagnosed and untreated because of that. Our city was sued because the school district was warning parents NOT to get their child labeled with any special need--because they didn't have the resources to help them.

treatments for Autism
Some of the treatments we have tried with our son and were helpful are some of the same things Mr. Savage has written about in his earlier books; like homeopathy, nutrition, and herbal medicine. There are specific things that have helped our son in these areas, like the GFCF diet, combating possible candida infections, providing an organic whole foods diet, vitamin B6, magnesium, and DMG.

The ABA therapy that once was considered harsh in its early form, has been refined and does not require any harsh techniques to work. This therapy is one of the only proven by research to actually produce significant improvment now.

These aren't cures, but have greatly improved my son's quality of life, as well as the quality of life of our family. If everyone was diagnosed early, as our son was (at age 3 1/2) maybe this will help the long-term prognosis for other children. However, I believe there is more than one cause of Autism, and so this might mean that there will be a lot of work to do to find the right set of things to help each individual child.

I was a volunteer in the inner city for 5 years, and there is a big reluctance to go to Psychologists, and I saw several children who went undiagnosed and untreated because of that. Our city was sued because the school district was warning parents NOT to get their child labeled with any special need--because they didn't have the resources to help them.

Crusades?
Cautions against crusades, I can agree with. However, I'm compelled to confront these short-sighted comments.

Citing comments from Professors like Camarata doesn't add any credence at all. Having a son with Aspergers I'm learning that the real experts are taking their cues from parents and children that deal with this disability all day every day and in every way.

While I agree, the abuse for false diagnosis and over-medication needs to be researched and confronted. The painful costs of delaying intervention have been personally felt as well.

Also, I'd like to know what is meant by "true autism". Whenever I meantion my son's autism, they immediately think either "Rain Man" (played by Dustin Hoffman) or the person rocking in the corner rapidly flapping his hands rapidly. There are many forms of autism and levels of severity just as there is with many illnesses such as cancer. The Autism Spectrum has been applied because there are many disorders such as Aspergers Syndrom, Pervasive Development Disorders, etc. that share the same characteristics as autism and to a degree benefit from similar therapy and methods of intervention. Being stuck on "true autism" puts the progress that society has made in this field of study back another 50 years.

Crusades?
Cautions against crusades, I can agree with. However, I'm compelled to confront these short-sighted comments.

Citing comments from Professors like Camarata doesn't add any credence at all. Having a son with Aspergers I'm learning that the real experts are taking their cues from parents and children that deal with this disability all day every day and in every way.

While I agree, the abuse for false diagnosis and over-medication needs to be researched and confronted. The painful costs of delaying intervention have been personally felt as well.

Also, I'd like to know what is meant by "true autism". Whenever I meantion my son's autism, they immediately think either "Rain Man" (played by Dustin Hoffman) or the person rocking in the corner rapidly flapping his hands rapidly. There are many forms of autism and levels of severity just as there is with many illnesses such as cancer. The Autism Spectrum has been applied because there are many disorders such as Aspergers Syndrom, Pervasive Development Disorders, etc. that share the same characteristics as autism and to a degree benefit from similar therapy and methods of intervention. Being stuck on "true autism" puts the progress that society has made in this field of study back another 50 years.
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