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Tuesday, November 13, 2007
Thomas Sowell :: Townhall.com Columnist
Crusades Versus Caution
by Thomas Sowell
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Will the Dems' health care Christmas Present to America be an improvement or detriment to our health care system?


Autism is a devastating condition, both for those who have it and for their parents. At this point, its causes are unknown and if there is any cure for it, that is unknown as well.

There are many ways of coping with tragedies. One of the less promising, and often dangerous, ways is to launch a crusade.

Crusades may be emotionally satisfying, politically popular and welcomed by the media. But crusaders are not known for caution, for weighing evidence or for counting the costs, which may extend well beyond the cost in money.

There have already been many casualties in the crusade against autism, and there may be far more if recent recommendations of the American Academy of Pediatrics are carried out to have every child tested for autism twice by age two.

Think about it: How many people are qualified to diagnose autism? Enough to test every child in America? Not bloody likely.

Professor Stephen Camarata of Vanderbilt University has tested and treated children with autism for more than 20 years.

"While it is relatively easy to identify a five year old as autistic," according to Professor Camarata, "it is much more difficult to reliably diagnose a preschooler or toddler."

The word "reliably" is crucial. Anybody can unreliably diagnose autism, just as anybody can unreliably predict the weather or the stock market.

The consequences of unreliable diagnoses of autism can be traumatic for parents and children alike.

As a result of organizing a group of parents of late-talking children back in 1993, I encountered many stories of emotional devastation that these parents went through because their children were diagnosed as autistic -- diagnoses which the passing years have shown to be false more often than not.

As a result of writing books about these parents and children -- the most recent being "The Einstein Syndrome" -- I have heard from more than a hundred other parents with very similar stories.

Professor Camarata at Vanderbilt has a far larger group of parents of late-talking children, since he specializes in studying and treating speech disorders, and he has likewise found numerous cases of false diagnoses of autism among children who are late in beginning to talk.

More is involved than the needless emotional stresses of the parents. Many of the treatments inflicted on children diagnosed as autistic would be called child abuse if they were not done as medical procedures, and they can set back or distort a child's development.

Once the "autistic" label has been put on a child, it can follow him and her into schools and beyond, causing that child to be treated differently by teachers, nurses and others.

Too many people refuse to reconsider any evidence contrary to the label, however blatant that evidence becomes or however much that evidence increases over the years.

The initial evidence on which a diagnosis of autism was based may be nothing more than a checklist of characteristics of autistic children, often administered by someone with nothing more to go on than that checklist.

The fundamental problem is that many items on such a checklist can apply to many children who are not autistic. A study of gifted children, for example, found many of them showing the kinds of characteristics found on checklists for autism.

According to Professor Camarata, "because there are no reliable biomedical markers for autism, diagnosis must rely on subjective rating scales making it difficult if not impossible to conduct accurate screening in toddlers or preschoolers."

But it is precisely the checklist approach that is being urged by those who are crusading for every child to be diagnosed for autism before age two.

Like most crusaders, they seem unwilling to consider the possibility of errors, much less the consequences of those errors.

The very definition of autism has been expanded in recent years to include what is called "the autism spectrum." What this means, among other things, is that there is now far more wiggle room for those whose diagnoses have proved to be wrong, who refuse to admit it, and who are now even more unaccountable than ever.

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About The Author
Thomas Sowell is a senior fellow at the Hoover Institute and author of The Housing Boom and Bust.
 
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at least they're making a difference.
(see last week's column.)

There are different levels of autism
At least that is true with one of my daughters. She was never officially diagnosed with autism as she appeared normal to the outside world.

However, to live with her was an entirely different story. After being around her for a while one could easily tell that she was sort-of different. This started at about age 4 (she is now 26). Basically she just saw the world differently. Also, she never gets sarcasm or jokes in general. She trusts people implicitly because she can't immediately recognize that someone is lying to her. She will eventually figure out if someone if "playing her", but by then the episode has passed. Yet, she can work, drive a car, and go to college. All on her own. And she fully realizes she is different, but is powerless to change anything.

All I can say is that I am glad she was never diagnosed/branded as being autistic as it would have changed everything. Her entire educational curriculum would have been altered. She is an excellent singer, but most likely would have been passed by for the school choir. Through repitition she has learned to be self-sufficient in that she can get around on her own without difficulty. I wonder how different things would be now had she been caste as autistic at age 2. Not a very pleasant thought.

That's the whole trouble with branding
be it autistim or adhd or anything else. Once branded NEVER released!

I grew up in a large city during the 40s and NEVER knew anyone with:

ASTHMA
ADD
ADHD
Autism

And those are just the A's! I am NOT SAYING these conditions do not exist - I am saying they are misdiagnosed MANY MORE times than correctly.

I knew people with Down's, epilepsy, and a host of other conditions now gone: polio for one.

Maybe, just maybe there is SOMETHING causing this epidemic. Not just big pharma's rush to greed. Mercury - maybe. Emanations from the television for all I know. But something.

Meanwhile, each parent has to decide on their child's future. NOT government.

Diagnosis Failure
I am very glad they did not know about autism when I was a child. Until I started school I would have fit every single item on the Autism Checklist except late talking (I started young and have never stopped), including not noticing or pointing at things, not responding to facial expressions and not recognizing people. The reason was not discovered until I started school: I was born severely nearsighted! Once my vision was corrected, and with experience, the symptoms disappeared. Likewise, at least 10 kids in my Grade 6 class would have been diagnosed as Autistic because we had been shifted from the gifted track into the Mainstream classroom where an overburdened first year teacher had no time for us -- and we spent all our time creating a disturbance because we were BORED.

Just like the mother of my foster grandson who had never had any experience with little boys until she adopted one, and like most conspiracy theorists, Occams Razor has gone by the wayside as they seek for complex teevee-type explanations for simple problems and thereby elevate their status as Victims and ruin the lives of their kids.

Intersting informative altogether
excellent posts. Thank you all. As an assistant teacher, i appreciate the new information, and can support much of what Dr. Sowell and you all are saying. That Sowell is a wise one, isn't he? Before i retired, i worked with a brilliant engineer, a real go-to guy when you needed something done. He wore glasses like bottle bottoms. One day while we were talking he remarked he never learned to read until he was a junior in High school because no one realized he could barely see until then. Once in glasses he caught up so fast he finished college with his high school buddies.

Good column
Being a bit of a cynic, I suspect that one of the reasons that so many of these varients of normal--whatever normal is--are being "diagnosed" is that otherwise the "health care provider" won't get reimbursed by third-party insurers.

When my older son was in his late teens, I happened across an Ann Landers column enumerating the symptoms of autism. Had I read this when he was a young child, I would have been devastated, as he exhibited many of them. While he did turn out to be dyslexic, this was addressed; he graduated from college with a very respectable GPA and is now pursuing a successful career.

Dr. Sowell is absolutely correct in challenging the lunacy of attempting to pin life-altering labels on children based on nothing more than a checklist.



Autism is needed
Don't the skuls get more federal money for kids with the long laundry list of un-provable problems we have created since increased Federal funding for such?

Skul district have an obligation to local taxpayers to diagnose kids with some disorder to get more federal funding and show increases in SAT scores by removing kids from test taking etc to help show locals what a great job they are doing?

Since fed funding, these diseases shot through the roof. Giver-ment always gets more of what they pay for.

Deskjockey Don't forget the lunches
Schools also get funding for having more kids get free lunches, and breakfast, too.

That's why a middle class neighborhood will have a wildly disproportionate population of kids on free lunch. The form they send home actually states this, if you read it closely.

Don't forget the profits in maladies.
There's always a profit motive, and the more kids diagnosed with Autism, the more profit. More children are diagnosed as more money is provided to the people who diagnose them. (gotta justify their salary). How many people raise obnoxious kids, and rather than correcting them, have them diagnosed as ADHD, so they can be absolved of any responsibility for their kid's bad behavior?

First, only a few wild kids had ADHD. Then profits came into it, and a whole industry of social workers, drug pushers, and special teachers rose up to meet the challenge. Government was right there to feed the flames, and soon EVERY child was suffering from some expanded form of ADHD. (A completely undiagnosable malady, since every symptom is evident in every child, so only "experts" can tell us who has it.)

Now all the jumpy kids have been diagnosed, so we MUST find some way to get drugs into the quiet kids too - Autism appears. This has all the benefits of ADHD, in that it's completely undiagnosable - medically, and simply being shy/quiet is enough to get you a lifetime diagnosis with all the attendant social workers, drug pushers, and special teachers rising up to meet the challenge.

Government is the problem here! They fund the schools/nuts who push these diagnoses on the rest of us. If only a few kids suffer, then no one gets government funding. To get government action, the maximum number of children must be diagnosed. That's why you see diagnosis creep. Once, only severe problems were diagnosed as Autism. Now it's been expanded to cover children that no normal person would even see as a having a problem.

Go to the ADHD/Autism site. Take the tests. I bet you have, or have had several symptoms of both these inflated maladies. I'm not saying there's no problem with some fraction of the kids diagnosed, but I am saying that the diagnosis creep seen in both of these maladies is a direct result of Government funding.

Autism is an epidemic
So what is Dr. Sowell's solution? Should we not fund research into the cause of Autism or should we just leave it to the marketplace. Oh but those are the greedy Pharma companies, but wait they are part of the marketplace so what they do can't be wrong right? Might it be lead from toys and baby furniture manufactured in China? How about the PCB's in the plastic baby bottles? In the end it will be pollution that is having an effect on our children. Certainly the increase in asthma can be attributed to more urban living and more air pollution. Take a look at China’s pollution when they host the Olympics next year. That would be the U.S. without the dreaded EPA telling companies that they can’t just dump their waste products into the environment.

Is Dr. Sowell saying that all of the carcinogenic chemicals that show up in breast milk are a good thing?

When I started in school social work
`more than 45 years ago, in our small district, we had 3 or 4 autistic children we taxi cabbed to a center program where other districts surrounding us also sent their 3 or 4. When I , retired 33 years later, we had a room (6 to 8) children at elementary and middle school level and two rooms at the high school. Something is happening but what it is, is still unknown.

I do know, over the course of years, I became pretty good at identifying autistic children on the whole spectrum. At a month and a half, I diagnosed my nephew, although i kept that knowledge to myself and my husband (because of the emotionalism arising over this identification) and left the parents to contact their doctor as the puzzling characteristics became clear to them.

Dr. Sowell writes -- last paragraph...
..."The very definition of autism has been expanded in recent years to include what is called "the autism spectrum." What this means, among other things, is that there is now far more wiggle room for those whose diagnoses have proved to be wrong, who refuse to admit it, and who are now even more unaccountable than ever."
--------------------------------------------------
Dr. Sowell was way too nice in this paragraph. The now available "wiggle room" to the diagnosticians allows them to not only become less accountable, it allows them a greater "range" for diagnosis as autistic. This means way more very young children are mistakenly called autistic and will consequently carry that "stigma" for the REST OF THEIR LIVES! This is unconscionable!

BTW RedEyeRex, I went back and re-read the entire article and I didn't find any reference to any "causes" of autism other than when Dr. Sowell said in the first paragraph that both the causes and cures are unknown. To that end, IMHO, your attack on this great man is totally unwarranted. You ask what is his solution, but if you read the column you would know that the one thing he is advocating above all else is "reliable diagnosis" and that, my impulsive friend, may very well drop this serious problem out of the "epidemic" status you have so cavalierly assigned.

TBC :>|

Scary Bureaucrats
Although it may SEEM OK to test for this scary condition, it is wrong to require it. It is wrong to leave it up to a bunch of bureaucrats who may make things worse. My son was a late talker. So what? But now I can't get him to be quiet. Thank God someone didn't pin him with the label of autistic.

Bureaucrats are scary because they want to seem like they are doing their job when their jobs are actually unnecessary govt spending.

RedEye...
You'd better get the red out.
Every eingle study after study has proven over and over that babies fed on breast milk are in general healthier than otherwise.

''Overdiagnosis'' is always a risk
--
...especially in America's increasingly litigious environment. It used to be that only the obstetricians had to worry for 22 years after each delivery about being sued for some sort of adverse outcome associated with a patient's confinement; now the pediatricians and us primary care guys have to look at a "tail" extending until each kid we've seen is one year (for discovery) past his 21st birthday.

Given that the next POTUS is going to be substantially owned by the Plaintiffs' Bar (as the Congress already is), is it any wonder that - given the recent AAP (*and* American Academy of Neurogy) recommendations on autism - that when we've got to consider the possibility of autism, we trip the diagnostic panic button?

Also, is it any wonder why those of you who support Dr. Sowell's position on this matter ought to be campaigning ferociously for the nomination of Ron Paul?

Wouldn't you *MUCH* rather have an obstetrician in the Oval Office than a corporate lawyer with the morals of a moray eel?


--

Sowell's Right About Checklists
My 5 year old daughter was diagnosed with autism, ADHD at 3 years of age. The diagnosis wasn't for us "terrible news" but rather a relief, since it gave a name to what her behaviors were about (banging her head, biting her wrists, screaming, self violent, violent toward us tantrums that last over 40 minutes, hand flapping, etc).

That diagnosis wasn't just a checklist. It was based on a battery of tests and the DSM IV is used as the final guide to determine whether someone is on the spectrum. You have to meet differing numbers of criteria in each category to be autistic.

I agree with Dr. Sowell about the dangers of false diagnosis. A child not being able to talk very well, or at all, is not enough to qualify that child as being autistic. There is a lot more to autism than just speech issues.

I disagree
I cannot tell you just how callous all of this sounds. First off, go back and read the article again: autism advocates are petitioning the AAP to recommend a simple autism test for all children given the current epidemic. No mention is made of govt intervention or intrusive bureaucracy, none. There is no mention of an industry-sponsored front group asking for this, so forget money as a motive. Do you honestly think that a simple 5 minute exam is going to to put your kid's pediatrician in a Porsche? The issue is simple- kids diagnosed with Autism Spectrum Disorder will not be definitively diagnosed with this test but will be referred to a specialist that is capable of doing so. Kids that have it benefit the most when therapy is begun as early as possible, preferably by age 3. That is the reason for testing. Autism is something that most peds docs don't even consider and often the parents get lame recommendations or the old "Einstein didn't talk until he was five" rubric. I've been through this twice now. My seven year old son was never quite right; seven months of colic went straight into two additional years of misery. He was a child that never smiled, would never look at us, never played with toys properly, lined things up repeatedly, was fascinated by ceiling fans and the list goes on. For four years several different peds docs, PAs and nurse practitioners were 100% positive that nothing was wrong. My wife and I had to practically force a consult to a specialist 2 hours away. Most people think that the ASD diagnosis is devasating; it's not. Once it is made, you can finally get services for your child that they need.

Clay
I am with you. It was a relief to finally be told what was wrong with my oldest son, after years of being passed off by providers, even some early childhood specialists that really should have known better. The relief is that there is treatment and that it is not simply that we are bad parents. It was a little devastating when my four year old was diagnosed but we got treatment started early and he is doing great. Sooner jj- I had a post get lost but noone is asking the gummint to be involved. Autism advocacy groups are asking the AAP to recommend CHAT tests for 18-24 month olds. It is not a definitive diagnosis but something that is considered in making a referral to a specialist. Mr Sowell is dead wrong on this issue- we are seeing an epidemic of ASD and treatment is best when started early. My daughter is totally normal but I will have my six month old son tested next year, you can bet.

CVN65
"Most people think that the ASD diagnosis is devasating; it's not. Once it is made, you can finally get services for your child that they need."

Well put. : )

"For four years several different peds docs, PAs and nurse practitioners were 100% positive that nothing was wrong."

We were being ignored by Edith's neurologist (she has epilepsy), it was a fluke that a nurse suspected something and from there we took her to a psychologist and the rest is history

Clay
Well, you know of whence I speak. Most people out there don't understand that this is a disease that you face on your own. While our kids lives are not at risk, the life they might have is. How can you explain to someone that your four year old son has never made eye contact or smiled at you, has never said "I love you" or anything else for that matter? How do you get over the feeling that comes when you are told that the kid is ok when he is not? When my oldest son was diagnosed with Aspergers I really wanted to drive back to the Air Force hospital at Langley AFB and show them all that we were right and they were wrong. Anyway- good luck to you and your daughter- I know what you have gone through and are going through- both of my boys have ASD and the baby boy will be tested at 18 months. God bless and ignore the mean old ladies at the mall.

CVN65
The question, though, is why EVERY kid needs to be tested, regardless of how asymptomatic he or she is.

Autism is rarely something that parents simply wouldn't notice, and wouldn't think to have diagnosed. We need not test everyone for it at the age of two, to ensure that parents who do observe unexplained symptoms get consults, and correct diagnoses, more easily than you apparently did.

The potential for damaging overdiagnosis is very real, as demonstrated by the more than 50% diagnosis reversal rate cited by Sowell. It doesn't help children who aren't autistic to be diagnosed as autistic, any more than it helps normal little boys to be diagnosed with ADHD and medicated with Ritalin for years.

I understand why it seems callous to bring up liability and profit in relation to this topic, but there's no getting around the fact that whenever a new professional or industry standard is set, someone profits from the new obligation, and new bases for liability are established. It would be imprudent to assume those factors away. Regardless of what prompted the AAP proposal, for various professions and industries it will become an issue affecting their bottom line.

Independent Thinker
I didn't say that Mom's shouldn't breast feed, but at 12 - 18 months those kids have teeth. We need to take the PCB's out of plastic that contains liquid that is consumed by humans.

BTW The Black Cherokee

As usual Dr. Sowell's solution is to leave them alone and they will come home with Mary following behind them.

Dr. Sowell never mentioned a solution but trots out the if we just would spank those kids more they will behave. What the hell is a reliable diagnosis if we don't test the babies? More conservative puke for the Townhall babies to lap up. Tell me again what makes him a great man?

A Crusade Worth Fighting
First, Clay and CVN65 raise excellent points and my heart goes out to you.

KM-- you have it backwards. As a father with an autistic child I can tell you by my first hand experience schools are not making money from teaching autistic children. In fact, it’s quite the opposite. Schools are pushed to their limits financially and discourage putting autistic children on 504 or IEP programs because of the cost, time and extra effort involved. The schools are losing money with each diagnosis because the government does not fully reimburse the schools for their efforts.
Of course the diagnosis must be correct. The push to test early is because the earlier the child is diagnosed the more likely he or she will lead a better life. It’s less expensive to treat a child for autism than pay for services to care for an adult with autism. There is a great benefit to educating the public about autism and encouraging parents to talk to their pediatrician about this issue.
And your reference to kids being “jumpy” or “quiet” and parents not being responsible for their kid’s behavior is typical of those who don’t live day in and out with autism or ADHD. It’s easy to critique and blame from the sidelines. I have seen, and even taken, some of the test and could also be seen as having some of the conditions of autism myself. But the difference between my son and I is that his conditions are chronic and debilitating. He’s not just an “obnoxious kid.” His brain is different than a typical child’s and he processes the world very differently to the point of endangering himself. The diagnosis was a relief, not a burden. Finally we had an explanation for my son’s problems. KM, what’s the excuse for your problem? Ignorance? Stupidity? Both?

dyerje
I am not up on the latest efforts and I do agree that not every child needs to be tested. The effort is to get peds docs more aware of the problem- you would be surprised that most don't know smack about it- and to goose them to do a simple test whenever it is suspected. The CHAT test is simple and only serves as a screening tool. It serves as a basis for referral to an appropriate specialist. I would bet dollars to donuts that the great majority of those reversals are diagnoses made by unqualified individuals. And you are quite incorrect about parents missing learning and developmental disabilities- it happens all the time. It often takes intervention by grandparents or the school before a child gets a consult. Many, many parents are in denial concerning their children's problems and end up missing out on those crucial years from 3-6 that matter so much. You are correct about new industry- unemployed, new teachers are often employed as TSS workers. (But this movement is not backed by the national TSS workers union- it is backed by the desperate parents of ASD kids that want to help others avoid some of the pain and help their kids.) And thanks for the concern.

one other thing
A diagnosis does not define the person. My son has Aspergers but I fully expect he will go to college. He already demonstrates reading ability and comprehension far beyond his classmates' as well as problem solving and math skills 2 years ahead. So, the diagnosis doesn't always sentence a kid to short bus status- they wanted him to skip first grade but his emotional problems kept us from doing that. Early diagnosis is the key. RedEyeRex: I'm not sure that you read the same article. I heartily disagree with Dr. Sowell on this article but recognize that he is indeed a great thinker and educator and has been in a similar situation as a parent. (He was just on the other side of the fence- the luckier side) There really is no need for extrapolation or insults here.

CVN65
"God bless and ignore the mean old ladies at the mall."

God bless you too. I know all about the staring people. Whenever we try and take Edith to the mall, restaurants she often becomes a screaming violent mess.

Out of curiosity, what does your handle mean?

How much money are we talking about?
I don't have research to back this up but I'm fairly confident that there are federal dollars available to public schools who accommodate autistic children. And if the money is distributed on a per-child-basis - the more autism diagnoses, the more money you get - it's understandable that there will be more children diagnosed with autism.

Call me cynical, if you'd like. MY child will never be put in a position for such an arbtrary, and potentially damaging, diagnosis.

RedEye
Can you please help me out.....exactly where in this article did Dr. Sowell suggest that, ..."if we just would spank those kids more they will behave"?

If you want to have an honest debate, please don't make up comments.

Autism: The ones who are autistic
Google:
CVN65 - Enterprise Class Aircraft Carrier, Airplanes, tanks, ships, weapons, ... The USS Enterprise (CVN-65) is the first nuclear-powered aircraft carrier to

Autism: The ones who are autistic need OUT of public school and int0o one where their special problems can be accommodated. In public school, they are left back in a corner while the normal kids continue their education in groups that fit the norm. Putting these autisitc kids in a setting whre they are jeered, and become disruptive because they can't communicvate with teachers and other kids does a disservice to the teachers, the other kids, and to the ones with special needs. A typical government response. One size fits all.

Errors in Diagnoses
Yes, diagnostic errors can occur in Autism, especially without a definitive medical test. And in the case of false positives for Autism, some unnecessary emotional stress surely occurs. However, I question the suggestion that the child would remain "branded" for life.

Even parents of children whose autism diagnosis is certain make every effort to resist the labeling of their child as an "autistic boy" or "autistic girl". Rather, most prefer an acknowledgement that their child "has autism".

The difference is not trivial... the first suggests an inherent trait, while the latter a treatable condition, which I believe autism is, and has been, for my grandson. His parents and teachers are making every effort for him to be successful in the typical classroom setting, and would be very pleased to drop the autism diagnosis.

The real danger is in missing the early diagnosis. Behavioral treatments for Autism are vastly more successful for ages 2-5 than for older children. We are grateful that our grandson was diagnosed at age 2, and began behavioral therapy early.

I am convinced that the benefits to families, children, and society from requiring early screenings of all children far outweigh the harm caused by the "false positives" which occur.

Salty
Thanks for the definition. I suspected it was something to do with the Navy. I am in the Air Force and I thought cvn looked familiar.

I would agree with your assessment of getting some autistic kids out of the public school and into a school more suited for autistics. Some of these children can be mainstreamed, at least somewhat, and so where mainstreaming is possible the better off those kids will be as they grow into adulthood. But, there are some who need special schools.

I tried to get the local school to agree to move my daughter to another local school with an autism program. They clearly couldn't handle her violent behavior and screaming and had already called me to pick her up six times this year. But, in the end they didn't want to budge. They said they wanted a second chance. To which I replied, that they were no longer to call me to pick her up just because they can't deal with her.

Clay
Salty beat me to it, as I expect someone named Salty to do. I was onboard the USS ENTERPRISE from 98 to 01 as ship's crew. Speaking of Salty- you need to realize that "Autism" is an umbrella term. It runs the gamut from Rain Man to kids that only a trained eye (or parent) would pick up on. Many of these kids are exceptionally bright and do not need to be in SPED classes. Many times they need direction and help staying on task or tansitioning from one task to another. Like any kids, they have good and bad days- theirs are just magnified. My son is still in first grade so he has not yet had to endure any taunting. I fear the day it starts, though; he is tall, strong and good with his fists (Dad was on the Enterprise boxing team). All that aside, you are correct that it is the job of the parents and educators to put these kids in situations in which they can succeed. We have an autism class at a local school but my son is mainstream- he is projected to need no services at all in a few years. I think that being surrounded by other special needs children would be detrimental as they seem to puck up each others' bad habits.

Clay
Right on. If they want to keep the funding and keep your daughter they darned well better be able to handle all the issues. We get called for my son 3-4 times a week. I really feel for you and hope that you are your own boss or have a sympathetic employer. If they can't give your daughter what she needs, fight!

Wayne writes: KM, what’s the excuse for
your problem? Ignorance? Stupidity? Both?
------------------------------------

My problem is experience with poor parenting, obnoxious children, and people who explain it all away with ADHD. When you see a mother feeding her child nothing but donuts, letting him do whatever he wants (at work), and NEVER disciplining him - regardless of how obnoxious he is, you can see quite easily that his ADHD is a crutch - not a diagnosis. (My co-worker brought her "ADHD" son to work regularly.)

I went to the ADHD sites when it was becoming the new "epidemic". Surprisingly, I had ADHD, too!

I'm not saying (And didn't say in my post) that there are NO people who actually suffer from these maladies, but I AM saying that there are a lot of people claiming "Epidemic", when there is none.

I hardly think I'm alone in seeing the wildly over-diagnosed ADHD, and all I'm saying is now here's Autism - doing the exact same thing. First there's very few, with real problems, and then a whole industry springs up to get the Government involved. If there was no money to be had, you can be sure they wouldn't be lobbying Congress. Congress doesn't have a cure. Whether they're looking to line their own pockets, or just take my money to find a cure, the end result is the same. Congress is a cash cow, and someone is milking this Autism thing for all it's worth.

When you see an "Autistic" kid on TV, giving interviews on how he won the championship Basketball game, you know the diagnosis creep has gone too far. (This really happened here, on my local news.) Is your Autistic child playing Basketball? Does he give interviews to the local News? I suspect not. Either this kid does not have Autism, or Autism is being over-diagnosed.

Which is it, Wayne?

CVN65
"I really feel for you and hope that you are your own boss or have a sympathetic employer."

Thanks. I am in the Air Force and my supervisor supports me with all appointments I have to attend for our daughter. And you're right about fighting. If we don't fight for our children no one else will.

Crusades Versus Caution
I hate Autism. I hate that my son is Autistic. I hate that he has to have an aide accompany him at his "normal" pre-school. I hate the hours of his childhood lost to endless hours of ABA therapy, speech therapy, occupational therapy, social skills classes, etc.,etc... But, if I don't deal with the reality that he is autistic, how will he get help? We need the label to get services, I don't care what doctors want to call it, my child does not naturally learn the skills that make human interaction successful. I hate to say that he is autistic, most of our friends and family have not been told. It changes how people see him, so only those that need to know have been told. The people who work with my son would love to test his I.Q., but I refuse. I don't want another label, eccentric genius. I want a child who can grow up to make friends, have a two way conversation, go to college, hold a job, find a wife and have a fulfilling life. And all the work that we do is to ensure that he could lead a "normal" life.

CVN65 writes: I cannot tell you just how
callous all of this sounds. ...autism advocates are petitioning the AAP to recommend a simple autism test for all children given the current epidemic.
-------------------------

I'm sorry you feel this is all so callous, but since we've seen this before with ADHD, you can't expect us all to jump to attention now that another mysterious malady, that only an "expert" can diagnose, has come to the fore, and demand that every child be tested.

20 years ago, it was drugs. High school students were diagnosed as being part of an "Epidemic" of drug abuse, and thrown into drug rehab (right up until their insurance coverage ran out). The diagnosis described every teen in the country. Something about being disrespectful to parents, mood swings, and feelings of alienation. Wow, know any teenagers who fit that profile?! It was a scam, and soon there were reports of kids being warehoused in drug rehab clinics, and ejected as soon as their insurance money ran out. Too bad they were kids, and couldn't do anything about it.

10 years ago it was an ADHD "Epidemic", with all the supposed experts. The diagnosis describing every pre-teen boy. Something about being loud, disrespectful to teachers, and not sitting quietly for hours on end. It was a scam, and sure enough, soon there were reports of kids being drugged just for acting like boys. Too bad they were little kids, and couldn't do anything about it.

Now, it's an Autism "Epidemic". You want to subject babies to the latest "expert" diagnosis. When there are "autistic" kids on TV, winning championship Basketball games, and giving interviews - Trust me, it's a scam. Too bad the ones you want to subject now are just little babies, and can't do anything about it.

There was NEVER any mention of Government intervention in those earlier debacles, either. Supposedly, it was "FOR THE CHILDREN" in every instance! See any patterns here? Who's Callous, now?

KM
Not trying to pick a fight but, google Leo Kanner. You will find out that autism hasn't just arrived on the scene

I agree that alot of children have been perscribed Ritialin by lazy school teachers and have been falsely diagnosed with ADHD or ADD. However, there are actual cases of ADHD and ADD.

Also, I do sympathize with those who
truly have a child with a real problem. I know first hand that there are real children, with real problems, and I do feel for you.

That said, however, there is no excuse for demanding that All children must be diagnosed, just because your child suffers.

If you notice that your child can not walk at age 2, you take him to the Dr., where he is diagnosed with whatever is causing the problem. It's unfortunate for your child, but you do NOT then go on a campaign to insist that EVERY child be tested to ensure that every case of not walking be caught at the earliest moment.

This is where the problem lies. Your child is suffering, so instead of dealing with your problems, you insist that everyone deal with your problems, by insisting on some Government program to try to find as many similar cases as you can, to justify your desire to get a cure at any cost.

More kids with the same malady = more money to find a cure. Unfortunately, expanding the diagnosis to cover more kids renders my sympathy null, since it becomes quickly evident that the expanded diagnosis is baloney.

I do feel for you, but really, it's not my problem. That may sound callous, but no more callous than telling me I have to subject my baby to your "experts" testing, to justify your desire for my tax money to get a cure.

Sorry, my baby comes first, and this is wrong.
Parents of a child with a real problem will sense it, and the internet is just full of source material to diagnose any problems the Doctor misses. No mass testing is needed.

Answer: Both
KM—Which is it? Just because a kid can play basketball and give interviews doesn’t mean he can’t have autism. That comment shows your ignorance and that your experience with autism and ADHD is very limited.
Of course autism or ADHD can be misdiagnosed just as cancer or depression can be. And yes, some parents make bad choices that exacerbate the situation. But that does not diminish the fact that autism and ADHD is real and that I have seen an increase of cases in the last four years.

Thanks, I now see the answer to my question is both.

Clay, I agree that there are real cases
of both Autism, and ADD, ADHD. I'm not arguing that there are NO legitimate cases, only that the mass testing and mass diagnosing is a scam.

Someone is making money off all this, and it's taxpayers that are paying for it, one way or the other.

This is by far NOT the first time someone has pulled the wool over everyone's eyes, and it's ALWAYS the children. Children can't defend themselves, and gullible parents always want to err on the side of caution, so they submit their children too easily, to whatever test the schools, or Doctors tell them is needed.

This is where the problem lies, and it's about time we started asking some serious questions, about who is behind all this, and who is making the money off it.

The children can't ask, and the parents won't ask for fear of being wrong and making their kids suffer needlessly.

First forced Drug rehab, then forced drugs for ADHD, drugs to prevent STD's, and now Contraceptive drugs are being given to all children, regardless of parents desires, and it needs to end.

Now we have an "epidemic" of Autism, and yet I've never met a child with an obvious problem of Autism. Something's up, and it's time to question the "experts". They're going after our Babies, this time.

KM
"That said, however, there is no excuse for demanding that All children must be diagnosed, just because your child suffers."

I know you're not talking to me here. I am not demanding any such thing. Like a lot of others here have pointed out, time is of the essence and the earlier the diagnosis, the earlier interventions can be used. Interventions don't work as well once the child is past 6 years of age.

"This is where the problem lies. Your child is suffering, so instead of dealing with your problems, you insist that everyone deal with your problems, by insisting on some Government program to try to find as many similar cases as you can, to justify your desire to get a cure at any cost."

Again, it ain't me.

Wayne, it is clear that you follow the
ever expanding diagnosis path. First, a child with Autism had to exhibit profound symptoms, with a near total withdrawal from any contact with others.

Now, a successful High school student, who can excel at team sports, and has no problem interacting with a News camera crew is considered Autistic.

How convenient for you. Perhaps I too am Autistic. I certainly don't excel at team sports, and I would be way too nervous to do an on camera interview with the local news crew. But then, I'm not Autistic, so maybe you could tell me how to catch this mysterious epidemic.

Clay, I am not talking directly to you.
I would not accuse you personally, as I don't know you personally. I am accusing those crusaders who advocate mass testing, because they are advocating Mass testing.

If you're not advocating that, then please do not take offense. I totally sympathize with people who suffer, and want to share experiences with others, to help them see if they have a problem. However, requiring mass testing of the entire population goes well beyond helpful sharing of information.

All I'm saying is there's an agenda here, and it is worth knowing what that agenda is, and who is profiting from it. The parents of real Autistic children are being used, to further this agenda. There may be some actively involved, but I'm sure the majority are just pawns.

KM
I agree with you that should never be any forced requirement of mass testing. Only voluntary testing, and then, the results must be verified by a trained psychologist in accurately diagnosing autism.

KM-- Reactionary
It is only being recommended to have your child tested. As others can attest you lose valuable time with each year of doing nothing or the wrong thing. No one is saying parents should be forced to do anything.

By the way, I have seen people with mental and physical handicaps work at fast food restaurants. Does this mean they are cured?
Count your blessings you don't have to deal with these issues. It doesn’t sound like you’d handle it very well.

Mass testing (screening for autism)
As my previous posting indicates, I am an advocate for the early screening of Autism, for the reasons I previously indicated.

My wife and I, as well as the American Academy of Pediatrics, believe requiring early screening is in society's best interest and those of our children and grandchildren, and that the benefits to families, children, and society far outweigh the harm.

The CDC has stated that the rate of autism in the U.S. is 1 out of 150. In males, it's higher than 1/100. If early screening and intervention can significantly improve the ability of these kids to function in society, I support it. Even if your only concern is financial, it is fiscally prudent in the long run.

Those opposed seem to be very focused on the short term increased costs, and that their tax monies are somehow being wasted. There's a suggestion that wealth is being derived from autism, and that money is the reason for pressure on Congress.

Isn't it possible that autism is really widespread, that it's effects, which can vary widely, are really eased with early diagnosis and intervention, and that those pressuring Congress really have the best interests of children and society at large in mind?

Unless you believe the CDC, the American Academy of Pediatrics, and thousands of parents are somehow conspiring to invent a method of separating taxpayers from their money, then perhaps the need for autism treatment actually is serious and widespread.

I think spending a month or so in the home of a moderately affected autistic child might change some perspectives.

George says:
"My wife and I, as well as the American Academy of Pediatrics, believe requiring early screening is in society's best interest and those of our children and grandchildren, and that the benefits to families, children, and society far outweigh the harm."

Great. Then have your child tested. I don't need you telling me what is best for your children, nor does our government have a right to require testing. Additionally, they have no right to take from A to have B's children tested.

No Right?
Kenmills-- Do you have kids in school? If so, the government is already telling you what to do by requiring your child to have certain immunizations before they can be enrolled in school. They take from A to tell B to get immunized. I find it strange and sad that some are so adamantly opposed to information and suggestions. Are you not interested in getting all the information possible to ensure the health of your children?

It's about control stupids...
...Most posts on this thread seem to lean toward "mandated testing for autism". This is just plane wrong!!!! The government already mandates way too many things in our (and our children's & grand-children's) lives. What's one more? One more is just that -- MORE CONTROL of personal lives by the government. We, the people of this country, DO NOT belong to the government; THE GOVERNMENT BELONGS TO US. That is what this whole "column-with-thread" boils down to: Government Control (GC).

GC --- YES
GC --- NO

Your votes in the next national election (November 2008) will be cast for one of those two choices!!!!!!

You and I will have to live with whichever wins; GC-Yes and it's the rest of our lives; GC-No and it's wait for the next election to choose again.

It will be your choice people, this is just an small example of what is to come if we vote GC-Yes.

Think awfully hard about the arguments that have been made today on this thread.

TBC :>(

TBC
Most posts do not lean towards "mandated testing"! Nobody has mentioned that nor have they suggested that congress ram "mandatory testing" down our throats. A parents' advocacy group is trying to get the AAP to RECOMMEND early testing when indicated. We all agree that all kids do not need to be tested and nobody should be forced to have their kids tested. The fact is is that your peds docs are trained to look for leukemia, diabetes, chicken pox, etc; they have little to no training in detecting autism or ASD. Early diagnosis is the key to more effective treatment as has been pointed out numerous times. Treatment can not start until a diagnosis is made, a diagnosis can not be made if noone takes the time to check. My 7 and 4 year old sons have ASD, we are not checking our 3 year old daughter since she has absolutely no signs of it. Will we check our baby boy at the first sign, yes.

KM
Your comments throughout this thread show a near total ignorance of what ASD is. It is a spectrum of disorders that range from severe to mild and can manifest as strange physical activities, emotional instability and severe learning disabilities. A child can appear normal but still have many issues that can only be perceived by those trained to do so. You wrote about the "autistic basketball player" as if you knew the story. This young man had been on the team, as an equipment manager for four years; in the last home game of his senior season, with a huge lead, the coach threw him a bone and put him in. The boy was fed the ball and drained mutliple three pointers and ended up leading all scorers. The place went crazy for him. I felt great for him but what I felt for his parents goes well beyond that. That 2 mimnutes was a gift from God himself for them. For the very first time, in 18 years, their little boy got to be a normal kid, be cheered, fell like he belonged. You will never know this feeling and I am glad for you. I hope that you will educate yourself about this and maybe, just maybe, invite the "weird kids" to your children's birthday parties- it may not mean a lot to the kid but it will mean more than you can imagine to their parents.

Glad my son is just a little too old
I was frightened by this list.

My son is perfectly normal, but I am certain he would have been diagnosed autistic.

He started talking very early, but, once he could move around and pick up objects on his own, he decided he did not need to talk any more. He started speaking again when his needs got greater than he could communicate with simple gestures, but before that he found no need to say much.

Likewise, neither my wife nor I point. Somewhere in my youth, I heard it was rude, and so I never point at anything. I don't know why my wife doesn't, but, growing up in a house where no one points, my son doesn't point either. Not autism, just growing up in a non-pointing household.

Lastly, until about 6 months ago, he was painfully shy around strangers. He would have given all those signs of unemotional, detached bearing that people find symptoms of autism.

And even now there are certain people (usually rather brusque, pushy types) who put him off, and around whom he is still very chilly and distant. (Then again, so am I, which may be where he gets it.)

So I am quite glad this proposal came a little after he turned 2, as I would be quite worried if my son were likely to be subject to these tests.

(We did have a near miss on a similar labeling for life. As I said, he didn't talk for a long time, and my wife was frightened into taking him to see a speech therapist. Knowing how even "informal" early labels can attach to one forever, I talked her out of going -- he was only 18 months, and talking, just not talking "enough" according to a doctor -- and within 6 months he was saying more than most children of the same age.)

A bit off topic
Is there a great fondness for scaring mothers needlessly?

This test just reminded me of those "parenting" books that exist solely to frighten mothers with their "developmental milestones" checklists.

I recall one which said he should be eating crackers on his own when he didn't even have teeth. Another seemed to be saying he should be wrapping up his doctoral dissertation at 18 months.

Of course, being first time parents, the lists scared us at first. Eventually of course, we saw how utterly ludicrous they were, but it was still a little annoying to have some "experts" spending so much effort to convince us our son was abnormal.

So I am wondering if there is a reason that experts feel the need to scare parents about the rate at which their child is developing?

By the way
I know you all say that they will not be branded for life, but that is just not true.

I have filled out security questionnaires, bonding forms, and other applications which ask if I have EVER been diagnosed with a long list of symptoms.

So if I was incorrectly called autistic at 2, I would still have to say that I had been diagnosed or else resolve to lie on a form.

And even if I can try to explain it away (provided I get to see someone to do so after filling out that data on my form) it still creates a taint in a lot of people's minds.

Do you not call that being branded for life?

And I forgot
And I forgot in the list above that, no matter how hard you try, have you ever had anything removed from your medical records?

I still have records that say I am a drug abuser, even though a neurologist later diagnosed a neurological problem causing intense pain (though they can't seem to agree on which one). One doctor decided I was just seeking pain killers for fun (and somehow causing my skin to become mottled and my hair to fall out as part of this brilliant scheme), and his notes are still somewhere in all those records that follow me around.

So don't tell me that even a false diagnosis of autism will not follow someone around forever.


andrews
"My son is perfectly normal, but I am certain he would have been diagnosed autistic."

Not likely. Your son is missing alot of characteristics that it would take to place him on the spectrum of autism. Talking late, and shyness isn't enough to meet the DSM IV criteria to diagnosis him with autism.

Clay
Yes, assuming every evaluation is done by someone who cares enough to take their time and truly understands what they are looking for.

As the habit of allowing teachers to make preliminary diagnoses of ADD and ADHD has shown, many people will make diagnoses based on one or two symptoms.

I know that you see this a s a good thing as it touches your life directly, but I have every reason to fear that this is but the first step in the proliferation of misdiagnoses. If you doubt that look at the explosion of ADD and ADHD diagnoses which followed similar first steps by the medical profession.

It has gotten to the point where just being male and disruptive is almost enough to be condemned to Ritalin until you turn 18. And I have no reason to think this autism testing will be handled any more professionally. No matter what the intentions of those calling for testing.

andrews
"I know that you see this a s a good thing as it touches your life directly..."

You are mistaken. Teachers aren't qualified to diagnose students psychologically. My daughter's diagnosis didn't come from a teacher. It came through a psychologist. It wasn't based on a "checklist" but rather a battery of tests and followed the guidelines of the DSM IV.

I agree with the abuse of Ritalin and misdiagnosis by teachers and maybe some (but a miniority) psychological professionals regarding ADD and ADHD.


Autism
My last post was wrong: Go Here:
http://www.bolenreport.net/feature_articles/feature_article 058.htm
There is an underscore between feature
and article in both cases.
Thanks,
joe

Autism
My last post was wrong: Go Here:
http://www.bolenreport.net/feature_articles/feature_article 058.htm
There is an underscore between feature
and article in both cases.
Thanks,
joe

Misdiagnosis is...
Misdiagnosis is becoming more common because more parents are looking for excuses for their children. As a teacher for 15 years I have never suggested that a child be tested for any reason. But when children today are not acheiving what their parents want because they are not taught the values of hard work and descipline at home, parents want to excuse their children from any responsibility. The parents themselves don't hold their children accountable. Just look at what the 20 somethings are doing to the work force. If we don't change our expectations, our society is in force is in deep trouble.
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